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link contains unsuitable sublinks etc, so use your search engine, i wont paste it. just google: EXCLUSIVE - The 7 mothers who lost their teenage daughters to ALS 5 months old

I had my feeding tube put in in April of last year. My ALS is bulbar and I no longer can take anything by mouth. Several weeks ago I noticed that there was blood at the opening. It is not a lot, but there appears to be a little blister or skin tab protruding from the opening. I am now...

Hello All, I want to first say thank you for taking the time to read this post. I have avoided posting here for about 1 year but due to changes recently I have decided, still with some hesitation, to post. I was going to write more of my history but I do not want to take up your time any more...

I’m concerned about my symptoms I’ve been facing them for just under 6 months. Let me start out by saying that my life is very stressful. I manage about 500 people all over the world. The ups and downs of corporate politics are very impactful and my stress level in the last 6 months has been...

Please consider participating in the second annual www.MoreThanOurStories.org Feb 12-13 in Washington, DC. This is a different kind of advocacy conference. No Powerpoint. No formal presentations. Lots of healthy discussion about government policies that can be improved for people dealing...

Hello all. I’ll start off by saying Happy New Year and I hope everyone has a joyful evening. I’m a new member to this forum but I’ve been reading post after post as a guest. I’m a 21 year old female who has been having worrisome (to me) symptoms. I’ll admit to everyone I am somewhat of a...

Hello, people!!! I'm so sorry for bothering you all and taking your precious time.. One day(it's became my dream lately..) I want to discover a cure for this awful, terrible disease... I'm a tall(1.85 m), white, 14 year old boy living in Europe. Recently I've noticed muscle twitches mainly in...

I think I read that colds manifest differently in us. Everyone around me has been sick and even though very careful I think it's my turn. only symptom is increased mucous causing repeated choke attack and runs to cough machine, like ten times a day?! Otherwise just fatigued. have increased...

Hi, I asked a single question lat month and was satisfied with the response as I felt it was helpful and very much appreciated. I just have two quick questions maybe someone can answer for me. Are hyper reflexes usually an early presentation or after weakness? secondly is cramping a late stage...

Marry Christmas Everyone! Sorry for the long post and bad English. To know my story you have to know a bit of my background. I was born in the Congo and lived there until age 7. I just turned 30 and things haven't been going to well personally to be honest. As you may or may not know, Congo...