advocacy

We just put up a survey to give grass-roots people a chance to share their thoughts and ideas on ALS advocacy. The survey will take about 15 minutes to complete. There is some very general demographic information followed by ten sets of issues from the recent ALSA advocacy listening tour. There...

As a part of the big meetings in Orlando this week, an Ask The Experts session has been included for patients and their families. As you can see on the agenda, there are short discussion periods after each presentation for people to "Ask The Experts." If you are attending and would like to...

The National ALS Registry is Here! All People with ALS Can Enroll in the Registry TODAY Dear Friend, The ALS Association is thrilled to announce that the National ALS Registry is now fully operational! Every single person with ALS across the country can begin enrolling in the Registry today...

For your consideration... __________ As We Approach The Mid-term Elections, Please Ask Questions Hundreds of Americans have made the ALS advocacy trip to Washington. Many have met huge accessibility and caregiving challenges to go there to ask for relatively modest federal funding for ALS...

Today's The Day To Ask And Learn This is a good opportunity to learn about the US CDC ALS Registry project and to ask questions.

... ALS needs a friend in DC. Please consider a write-in vote for an important ALS advocate. Senator Lisa Murkowski actually wears the red wristband and a lot of commitment to the cause. She has worked quietly behind the scenes with her colleagues to make the legislative achievements for ALS...

The ALS Association Advocacy Department would like to invite people with ALS and their family members and caregivers to join us for an informative webinar about the new health care reform law enacted earlier this year. The webinar will provide a general overview of health care reform and will...

ALS Advocacy: Hoosiers, Mark Your Calendars Thanks, all.

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Hi Everyone! I won the Leader of Tomorrow award from the ALS Society of Canada. The leader of tomorrow award recognizes youth and young adults under the age of 25 who individually or as part of a group are making a difference in the lives of those living with ALS through their...