Hello. I want to first say thank you for any information or insight you may be able to give me. I also wanted to say that my thoughts are with you all that have been affected by this disease.
I am concerned due to a few reasons.
About a week ago, I noticed something was "off" with my left foot...
Question for those who are losing or have lost their ability to sign their name— is there a procedure for obtaining a legal signature stamp in the US? Is this something useful and worthwhile exploring? Looks like this problem is on the horizon for me. Thanks in advance.
Hello Everyone!
My name is Cathy and am new here and trying posting for only the second time. Not so certain about how the rules and regulations work and feeling a bit apprehensive. What do I say to all of you?
I am 53 years old and live in Ohio with my husband. We recently became empty...
Anyone else been tested or positive? Curious.
I'm positive and Mayo thought certainly a more rare variant of Stiff Person. However, thus far, have not responded to meds. My MND doc at our university thinks PLS. Mayo admitted this week that maybe MND is what it is afterall. But first we try...
A special friend (David) of mine and my husbands is a 17-year survivor of ALS. David currently has a Tobii Dynavox I-15 (with eye gaze interaction – AAC device) speech generating device. His AAC device is calibrated to his eyes. David was able to communicate (with his wife and family, also with...
aac
ability
advice
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communication
dynavox
equipment
eye
eye gaze
eyes
family
friend
hope
information
life
medicare
movement
speech
support
technology
tobii
tobii dynavox
tobii dynavox i-15
work
I anticipate using the Hoyer lift within the next few weeks. My wife's ability to lift herself is steadily decreasing . We still managed to get her in a standing position but she is asking that I do most of the lifting.
I was not at home when the lift was delivered so I did not get the...
Thank you for adding me/us to the forum. In brief, here is our story: My husband lost his mother to ALS when she was 59 years old. She had one aunt, one uncle, and two first cousins who also passed from ALS. There were a couple other family members who may or may not have had early signs, but...
ability
advice
als
denial
diagnosis
drug trials
early
familial
familial als
family
feeding
feeding tube
genetic
genetic testing
lead
research
respiratory
story
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trach
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wheelchair
Hi, I am posting about symptoms that I have been seeing in my father over the last 2 years.
He is 73.
He started having trouble swallowing his food about 2 years ago. He seen several doctors, and had a scope done, and it was brushed off as aging. He was told to chew his food better, and...
Hello all,
First I would like to say my heart goes out to those struggling with this horrible disease.
I’m writing today to ask opinions about my Dad’s situation. I will try to be brief, but thorough.
Nov. 2017 - Dad swears he remembers falling while outside, and then getting up and moving...
ability
arm weakness
atrophy
brain
breathing
christmas
emg
falling
fingers
frustrated
go away
heart
mri
muscle
muscle twitching
nose
pain
power
support
symptoms
test
tests
twitching
urgent
weakness
wheelchair
Hi,
I started a discussion here last September, right after having a mildly (but widespread) dirty EMG. I'm sincerely grateful for the support and encouragement I received from the PALS and other people in this forum, they helped a lot to get me trough a very dark phase of my life. I'm checking...
ability
als?
arm
arm weakness
autoimmune
bulbar
bulbar symptoms
choke
clinical
emg
eye
family history
father
mestinon
mnd
muscle
scared
sporadic
stiffness
support
swallowing
symptom
symptoms
twitches
twitching
weakness