ability

  1. J

    88 year old Mom recently diagnosed...please help!

    My Mom will be 89 in November. She was always very busy, doing her own cooking, cleaning, etc. She got out with friends a couple of times each week. She was just diagnosed in July with Bulbar ALS and is having trouble speaking clearly. Is there anyone out there who was diagnosed at this later...
  2. L

    legal signature

    Hi everybody! Hope you all had a great weekend. What do you PALS do for signing documents? My buddy has almost lost all ability to sign, but still has full cognitive ability to do so. I realize that eventually we will use POA, but is there something we can do in the interim? I've looked...
  3. L

    Biking again!

    My dear friend has been in ICU for roughly two months as we negotiate all the issues with finding care and housing for him, but we are almost there. He has been understandably depressed, but hesitant to try new things to help improve his mood. He has lost the ability to use his hands and lower...
  4. T

    Just diagnosed but rather advanced

    My PALS has just been diagnosed and not had their first visit at the ALS clinic where they will meet with all of the specialists, occupational therapists etc. she had neck surgery 9 months ago and symptoms increased after that, she was diagnosed with locked shoulder and treated for that for well...
  5. T

    Hello everyone- I want to share the end of my story

    Hello everyone. I have posted here before. I would like to post one final time and share the end of my story in hopes that it will help those who come here in future in a similar situation to mine. This will be long, so please don't feel like you need to read it- I am not seeking help, but just...
  6. S

    Slow progresser (long post)

    Hello to everyone, this is my first post, after spending a lot of time browsing the forums. It seems like a very supportive place. I've noticed in these groups as well as in the local ALSA support group we go to, that some people are dealing with the stress and demands of a fairly rapid...
  7. jethro

    Point of decision to use wheelchair

    it is hard to make a deal with yourself, when you decide to get yourself one, game is over. what was the reason you've decided to use wheelchair? fall? non-ability to make xy steps? how long before/after diagnose? i think that this is crucial life decission which erases all hopes, change dreams...
  8. E

    Female external catheter? (Purewick)

    Quick question on female catheters: I know internal catheters are a no-no typically because of UTI risks. Has anyone ever used a Purewick external catheter? My PALs is in the hospital and they are letting her try one. Is this viable for ALS patients home use?
  9. C

    Twitches, cogwheel motion, fatigue, breathlessness, loss of muscle mass

    Hi, I was just wondering if anyone here had experienced similar symptoms to what I have and have managed to receive a diagnosis for their condition. Approximately 3 years ago, I started noticing tremor on my left hand. I had difficulty holding my phone still to take pictures. At the same time...
  10. K

    Neuro visit

    Hi there, I am new to these forums. I have been following all of you amazing people for a while. I am 35, visiting my second neuro in July, to hopefully rule out als (so I'll spare a long post about my symptoms and "atrophy" pictures.) ;) In the meantime though, I've just been learning about...
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