ability

My PALS aspirated his yogurt a few days ago. This is our first trip to the ER because of this. They are doing breathing treatments and suction every four hours. Doing IV antibiotics. SATS staying around 90 until last night when he wouldn’t use his bipap and he was in the 80’s. My daughter came...

Hi Everyone, I know its been awhile since I have posted. I just felt that today was right. The love of my life has decided that the time has come to end the fight. He's been an amazing fighter for over three years. He dealt with this disease with far more postivity, and courage then I ever...

Hi , male 34 years old, italian (milan). first of all: 1) sorry for my bad english (I will try to help myself with google translate, anyway you will find many errors in writing in English, sorry) 2) I dont want to be annoying for any of you, I understand very well your sufferings and respect u...

Dear forum friends, after a mostly good year, a couple of harder months and a final night with lots of music and holding hands my PALS peacefully fell asleep and never woke up again. In the 13 month after diagnosis he lost a lot, his work (never missed), his ability to move (accepted with...

Hello everyone , I’m new here and I have some questions that maybe you would be willing to answer or help ease my anxiety. So I’ve had muscle twitches all across my body for about 2/3 months now. I was diagnosed with Prostatitis and ended up on 3 different medications. My anxiety levels where...

Hi everyone. I am on this form for my Mom who has been going through so much in the last few years. It all started back in Dec of 2016 when she lost all movement from her neck down. (For 8 days) all tests came back normal (MRI, CT scan blood work ect) She has since been losing movement...

Hi, Maybe I'm being hypersensitive to everything that's going on in my body - maybe I'm just getting "old" (I just turned 32) and don't know how my body is supposed to feel. I was running pretty well the last few months, training for my half marathon. I sprained my ankle and took about 2...

Hello I'm trying to get a general idea from those who have gone through the tracheostomy process. What was your recovery time like and pain? How does it feel when breathing afterwards? Is it something you have to get used to? Is it better than what you were experiencing as far as breathing on...

I’ve pretty much lost my ability to play bassoon due to loss of fine motor strength in my hands. I decided to make a series of recordings for my partner while I still could. I guess it’s a bit like voice banking in that I probably should have done this sooner. The recording here is a...

Hello everybody. Thank you in advance to everybody acknowledging my post. I will keep this as short as possible as I’m aware many of you are busy dealing with other people’s queries. I’m back after posting a few months back. Below is a summary of my symptoms. I’m happy to report I took all of...