neuro visit

[sharona]

Today Larry went to his first neuro visit at the Univ of Il in chicago .this neuro after doing tests in office said he doesn't have ALS ,but thinks it's Myasthenia Gravis .when the resident asked Larry how many fingers he was holding at different spot in front of him, when looking straight ahead he sees 2 fingers when there is only 1.then the doc was looking in his eyes with the light & was telling her student & the resident to look something wasn't what it was suppose to be but she didn't tell what was wrong.the doc is doing a single fiber EMG nov 17th.I don't know if anyone has ever had this diagnosed on this site. still not sure what is happening.
Sharon

 

[BethU]

Sharon ... that is good news. There is a lot of overlap between the symptoms of ALS and MG, and MG is treatable! It's not a walk in the park, but compared to ALS, there is much hope for the recovery of a "normal" life and lifespan.

Fingers crossed!

 

[sharona]

Hi Beth
Thanks for the reply.Larry is still very confused because of all the symptoms that match ALS & NOT MG,Like hyperreflexia,babinski ,fascis.guess time will tell, keeping finger crossed.God Bless
Sharon

 

[olly]

hi sharon.
your news is a little encouraging if it is mg but the als type signs like hypereflexia ect is rather confusing.
was it a als neuro?
before getting any diagnosed you should get a second opinion and question the neuro exam signs.
hang in there,we are all with you in spirit and friendship:smile:

 

[sharona]

Hi Olly,
YES she is an ALS Neuromuscle specialist at Univer of IL Chicago ,just confused at the babinski & hyper reflexia signs .We have seen 3 different neuros in 3 yrs. Just keep us i n your prayers love ya OLLY
Sharon

 

[Zaphoon]

I am hyperreflexic w/babinski and fascics and do not have ALS but do have PLS. I wonder if your neuro has considered PLS. Its a lovely disease! (ahem...)

 

[sharona]

Hi Zaphoon,
She said right after examining Larry she thinks it's Myasthenia gravis & is going to do a single fiber EMG & other tests.he has problems with double vision when they put up afinger & ask how many.when looking straigh ahead he sees two.we are completely perplexed.he is getting angry that no one even ALS neuromuscle specialists can be posiitve.He is getting the test Nov 17th so we will see what happens .I feel like I'm been drug threw a hole without an end. SO tried today emotionally drained.
Sharon

 

[Zaphoon]

The double vision thing really sounds troubling. Hopefully the EMG will bring some clarity to his condition. Who knows; he could have a mixed soup!

Zaphoon

 

[xtczero]

Hi Sharon

I'm interested in Larry's story, I've been having all Soughts of issues for the last few months, (with much thanks to a statin I was on) I now have wide spread incessant fascis and have recently found my eye drooping, dropping palate, weak breathing and my voice cracks up/ drops out if I talk above normal volume or talk too much. Everything bar the fascis are brought on or worsened by heavy exersion. I had a clean emg a couple of weeks ago so the neuro's are a bit stumped, I'm wondering if I should be pushing them towards MG. I hadn't really entertained it as a possibilty as fascis aren't common with MG (from what I've read anyway).
Anyway, if you could Share anymore info on Larry's symptoms it would be much appreciated

Cheers Wayne

 

[sharona]

muscle wasting,positive babinski ,hyperreflexes,some atrophy,now the doc said double vision which he was never tested for at any other time. fatigue,very weak in the legs, probably more but right now I tired and can't think..the first neuro said upper & lower motor neuron disease.this one isn't commenting to much on that yet.we will see on the 17th when she does single fiber EMG. hope this helps God Bless
Sharon

 

[sharona]

fascis too I told u i qwas tired.how could i ever forget them.