Als guardian angels

[hopingforcure]

Hi Friends,
I just want to reiterate that any help we can get helping the ALS GUARDIAN ANGELS getting attention, while getting people to empathize with Pals and Cals is a victory. I just want to lazer in on these messages, and trust me any of you are qualified to do that. Look what you guys give to this forum. We need to help Stu and his foundation be able to help so many.

[SMillheiser]

I REALLY appreciate what all of you are doing to help this foundation. . My dream is to have one (or more)of this forum's PALS/CALS representing the foundation at the next State Of The Union Address. Right along with the other heroes being introduced. I know what you are thinking... Stu must be having another flashback from his Woodstock days.

I am not the face of this Foundation. You guys are. The support I get from this forum keeps me going. You guys deserve the credit. Even those who have not asked for help have been so supportive. I only wish I had no financial restrictions, so I could make all of your wishes come true. Who knows... maybe it will happen. Someday.

Stu

[hopingforcure]

Stu, We can aim high, I believe with this group and your help anything is possible.
I was not kidding Joel C. about getting national attention, showing that life can go on with als, if we are given the oppurtunity and support. So look out, we may be seeing this yet. Ok guys keep on calling, e-mailing, tweeting(you got it Jenn), my-spacing, facebooking. As my husband always say's, eventually I will wear you guys down..

[brooksea]

I got automated response from Today...blah, blah...we will let you know if we use your idea for a show.

Hope others have contacted them as well.

PS-

Seems to me there should be some sort of corporate sponsorship - like CVS and Kroger do for ALSA. If a fairly large retail company would sponsor fund raising once a year that would be a giant help with donations and awareness. Just my thought.

[joelc]

Originally Posted by hopingforcure

Stu, We can aim high, I believe with this group and your help anything is possible.
I was kidding Joel C. about getting national attention, showing that life can go on with als, if we are given the oppurtunity and support. So look out, we may be seeing this yet. Ok guys keep on calling, e-mailing, tweeting(you got it Jenn), my-spacing, facebooking. As my husband always say's, eventually I will wear you guys down..

Sorry to hear you were just kidding - I guess I can now relax and not put anymore feelers out trying to make this happen. Should have known you did not mean it ..... lol

[kelly]

Yeah....I may be slow...but I sent my letter to the Today show! Let's hope that someone actually reads these emails. Stu..hopefully your amazing organization will receive some national attention.

[kelly]

Oh...also Joel...I hope that you can somehow be a representative for all PALS. I keep talking to my hubby about your strength and experience dealing with life with a vent.

[hopingforcure]

Oh Gosh Joelc I just read my post, I was not kidding at all about you being the national Spokesman for people living with ALS... It should have said I was not kidding.. Boy really changed what I wanted to say did it not? You are one of my heroes, and I already mentioned you being the voice of life with ALS when talking with Stu..

[wheeler641]

there is a new show that comes on everyday, it is called" the doctors", about 70% of the time they deal with lightweight topics. But they do have reprsentatives on the show that have different diseases and how they cope with them and patients with different diseases giving stories of hope. Since it is a newer show, maybe someone can call them and get joel on, to discuss living with als and the funding needed for research. It is just a thought, just would like to help somehow, margaret

[wheeler641]

wanted to bump this back up to the top, watching the show"the doctors" now. Today they have someone on that has M.S for 10 years and talking about how advances have been made in the last ten years and the trouble she ran into getting a proper diagnosis, now she is trying to bring awareness about M.S and the different symptoms associated with it and the research being done on it.. Thought again this show might be a good starting point. I mean maybe it is worth a shot.

[hopingforcure]

Love the idea Wheeler, we need any and all attention for ALS..
Anyone have anymore time for the GUARDIAN ANGELS FOR ALS? We need Joel out showing Stephen Hawking's is not the only one to live with ALS.. Sound's sad but we are in the new''s for a while with Stephen Hawking's being ill. I hope he recover's but we could strike the media interest while we at least have there ear...

[Tfisher]

Maybe we could use these guys to help us get some attention (LeDoux/Hrbek)?

http://www.startribune.com/local/north/38307524.html

[nova135]

I'm knew here. The als angels have helped me through a friend, but I do not know how to reach them. I hadn't even heard of them before, but when my als asociation local chapter didn't help, this organization did. Can someone give me a phone number or contact information? Thank you

Jean

[brooksea]

Welcome Jean! Sorry about not getting help where you thought you would (ALSA)!!!

Contact forum member Stu Millheiser. His wesite:

alsguardianangels.com

[lostinlouisville]

I have talked to my church and we are organizing a Christan concert and silent auction to raise money for ALS ANGELS. The Church will advertise and I will raise the items. Now what I need help with is, We are making a video to play in between songs and I would like some of you to video yourself, talk a little about your daily struggles with ALS and if Stu has helped you give a testimony about his organization and how it has benefited you. I want this to be professional and I want a lot of stuff there so I am thinking maybe June.If you can help with video PM me and I will let you know how to get the clip to me. Thanks

Renee