Old 07-13-2018, 05:24 PM #1 (permalink)
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Default Did Nelda Buss have ALS?

i guess there are many P"ALS" like this one woman:

https://www.ncbi.nlm.nih.gov/pubmed/11332188
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Old 07-13-2018, 06:38 PM #2 (permalink)
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Default Re: Did Nelda Buss have ALS?

Vert interesting, Jethro. Thanks for posting.
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Old 07-14-2018, 09:09 AM #3 (permalink)
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Default Re: Did Nelda Buss have ALS?

I agree, very interesting.
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Old 07-14-2018, 11:13 AM #4 (permalink)
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Default Re: Did Nelda Buss have ALS?

als, as my neuro said, makes disaster in one year. "wanna see?" (he wanted to take me to the room with als patients) "no, thanks." i said.
this woman was diagnosed JUST 6 months after symptoms onset which occured fast like thunder.
one year after onset, her muscles started to improve.
"However, since approximate 1 year after onset, her muscle weakness has gradually been getting better."
article's conclusion: "It should be noted that clinically diagnosed cases of ALS may rarely recover spontaneously."
BUT
first sentence in article is:
"We report a patient with motor neuron syndrome similar to amyotrophic lateral sclerosis (ALS) and with spontaneous recovery. "

so, something is similar to X, but it should be noted that clinicaly diagnosed cases of X may rarely recover spontaneously.

?
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Old 07-14-2018, 11:38 AM #5 (permalink)
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Default Re: Did Nelda Buss have ALS?

Yes, since ALS is a default diagnosis after ruling out all possible mimics, my guess is that it was either a mimic or a reversal. I read a book by a pastor who had ALS for 15 years. He worked for the first five. Others have lived without invasive ventilation for many years only to die of another non-related illness. Are these mimics or are their bodies somehow healing? That leads me to my main point. Are some of us here experiencing mimics? I suppose some of the mimics can be terminal just like ALS.

Many people believe ALS is a group of conditions creating the "perfect lethal storm." What about the cluster areas?

Are our contributions being used properly?
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