Tedstehr
Distinguished member
- Joined
- Aug 25, 2017
- Messages
- 199
- Reason
- PALS
- Diagnosis
- 08/2017
- Country
- CA
- State
- BC
- City
- New Westminster
I simply cannot get too upset about my ALS. Could this be a mental problem?
1) People die everyday from hurricanes, accidents and horrible cancers. I am alive today, and I may be alive ten years from now.
2) None of my family have suffered from bad health, mental illness or accidents. I can't imagine how I could live with them suffering those afflictions.
3) My progressions seems slow, but I know things will get worse. Eventually it will get really $h1tty. But not today, and maybe not for many years.
4) Even with incremental advancements, ALS may become like AIDS, something you just live with. And maybe in my lifetime.
5) People die of painful cancers, sometimes after painful surgeries, chemo and radiation that doesn't work. For the most part, ALS is not a painful disease.
6) My family gets along better now than we ever have. We tell each other we love them almost every day. And we are all more patient and understanding. This gift was packaged with my ALS diagnosis.
7) I discovered how caring and empathetic my friends and family are. One work colleague simply made a donation to the ALS Foundation in my name. Another just came over and did some Autumn gardening, My sister-in-law brought over dinners twice that lasted several days. And I heard my wife's somewhat gruff uncle teared up when he heard I had ALS.
8) I am living as a better person. I wish I had done this spontaneously, but I didn't until this. Oh well, at least I am here now.
9) I treat and love my wife the way I should have for the last 25 years, But pride, impatience and lack of empathy got in the way. That won't happen again.
10) I now have a great excuse for everything I don't want to do. My wife asked me to go to "Bard on the Beach" to see "As You Like It." Although I was in a few of his plays as a young adult I didn't feel like going so I just said my ALS was acting up. Kind of like a get out of jail free.
I hope this is not insensitive to PALS on the site who are further along in their progression, I did not mean it to be and I think about how hard that must be. Because the last positive thing I'll cite is I am now part of a small group of people who care for each other and truly hope life will offer small triumphs and joys to each other to make living with ALS less difficult.
1) People die everyday from hurricanes, accidents and horrible cancers. I am alive today, and I may be alive ten years from now.
2) None of my family have suffered from bad health, mental illness or accidents. I can't imagine how I could live with them suffering those afflictions.
3) My progressions seems slow, but I know things will get worse. Eventually it will get really $h1tty. But not today, and maybe not for many years.
4) Even with incremental advancements, ALS may become like AIDS, something you just live with. And maybe in my lifetime.
5) People die of painful cancers, sometimes after painful surgeries, chemo and radiation that doesn't work. For the most part, ALS is not a painful disease.
6) My family gets along better now than we ever have. We tell each other we love them almost every day. And we are all more patient and understanding. This gift was packaged with my ALS diagnosis.
7) I discovered how caring and empathetic my friends and family are. One work colleague simply made a donation to the ALS Foundation in my name. Another just came over and did some Autumn gardening, My sister-in-law brought over dinners twice that lasted several days. And I heard my wife's somewhat gruff uncle teared up when he heard I had ALS.
8) I am living as a better person. I wish I had done this spontaneously, but I didn't until this. Oh well, at least I am here now.
9) I treat and love my wife the way I should have for the last 25 years, But pride, impatience and lack of empathy got in the way. That won't happen again.
10) I now have a great excuse for everything I don't want to do. My wife asked me to go to "Bard on the Beach" to see "As You Like It." Although I was in a few of his plays as a young adult I didn't feel like going so I just said my ALS was acting up. Kind of like a get out of jail free.
I hope this is not insensitive to PALS on the site who are further along in their progression, I did not mean it to be and I think about how hard that must be. Because the last positive thing I'll cite is I am now part of a small group of people who care for each other and truly hope life will offer small triumphs and joys to each other to make living with ALS less difficult.