Steve Gleason act

[chally]

Anyone heard of this fellow? Seems he knows how to get and use the latest tech. In regards to our nightmare. Played nfl football.

 

[Nikki J]

Steve Gleason is extremely active in ALS circles. He has a foundation and has done much to help PALS through advocacy and direct financial aid. I personally know of a couple of instances when he / his foundation helped PALS cut through red tape. A couple of years ago he hosted a summit where leading researchers, doctors and PALS came together for education and to brainstorm ways to jumpstart research and trials. Steve Gleason is a true hero. His website which I will not link as it has a fund raising component can be easily found. Look for teamgleason

 

[GregK]

One of his peers both in the NFL and in ALS is Pete Frates.

 

[chally]

Thanks Nikki I'll look him up. Who's Pete frates? Love ya chally

 

[BlueandGold]

Pete Frates is a 31 year old who was diagnosed with ALS at 27 years old. He was a baseball player for Boston College.

 

[chally]

Thanks Vince, good luck with your packers, my eagles suck but at least they went out beating ny. HaHa