Old 02-22-2014, 01:08 PM #1 (permalink)
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Join Date: 2012
City: Gotham
State: Anywhere
Country: US
Diagnosed: 10/2012
Interest: I have been diagnosed with ALS.
Posts: 77
summerguy2007 is on a distinguished road
summerguy2007 summerguy2007 is offline
Banned
Join Date: 2012
City: Gotham
State: Anywhere
Country: US
Diagnosed: 10/2012
Interest: I have been diagnosed with ALS.
Posts: 77
summerguy2007 is on a distinguished road
Default Living with active ALS for nearly 6 years

I use my VPAP every night. I breathe without difficulty during the day. Some nights I just don't sleep well so I take a daytime nap. I walk with braces for about 350 to 400 ft. per day in my hallway. I split it up into 3 or 4 walks total. I eat well using regular utensils and drink ordinary liquids (coffee, water, beer). It has caused me trouble speaking. I'm hoping it progresses very, very slowly. In general I feel pretty good and remain positive.

My advice to people who are wondering if they have ALS is to pursue it through medical channels. There are hundreds of diseases that may present somewhat like ALS.

God bless everyone who deals with it daily (like me).
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