summerguy2007
Active member
- Joined
- Nov 21, 2012
- Messages
- 75
- Reason
- PALS
- Diagnosis
- 10/2012
- Country
- US
- State
- Anywhere
- City
- Gotham
I use my VPAP every night. I breathe without difficulty during the day. Some nights I just don't sleep well so I take a daytime nap. I walk with braces for about 350 to 400 ft. per day in my hallway. I split it up into 3 or 4 walks total. I eat well using regular utensils and drink ordinary liquids (coffee, water, beer). It has caused me trouble speaking. I'm hoping it progresses very, very slowly. In general I feel pretty good and remain positive. My advice to people who are wondering if they have ALS is to pursue it through medical channels. There are hundreds of diseases that may present somewhat like ALS.
God bless everyone who deals with it daily (like me).
