Sharlene, I say this with extreme caution, I did have strength return, this was documented through strength tests, EIM tests (new tests that is only used in a few locations that measures muscle deterioration by timing how long it takes for electrical waves to travel through your muscles). While I want to spread hope, I do not want to spread false hope. The Dr's have documnted the emprical data but can not explain it. There have been 15 patients to date and so far I am the only one to see this "miracle". The Dr's do not know if it is the stem cells immune supressing drugs etc. Remember this is a phase I safety trial. As a matter of fact they know so little that despite the fact that there have been other trials using immune suppressing drugs they are actually designing a trial now that would take patients who were early in progression and recently diagnosed and put them on the same immune supressing drugs I am on (as are the other 14 patients).
Of course they are continuing the stem cell trial as well and may even end up giving me more stem cells.
So I want nothing more then a treatment for everyone and hope for everyone which is why I want the bills passed so the ability will be there to speed up trials and encourage investment. I am not advocating for any one treatment but a faster process to benefit all.
