In reply to amazing story!
I'm not writing this to brag, boast or to get personnel recognition. I just want to give people diagnosed with this disease: ALS/MND, hope and inspiration! I was diagnosed with this disease. In 1977. 34 years ago. I sought three different opinions from three different neurologist. They all came to the same conclusion: "you've got 3 to 5 years to live. You should immediately put your affairs in order". Today, I'm still alive, walking and talking. I've got absolutely no power in either hands or arms! I used vice recognition. I take no treatment whatsoever for the disease. I haven't visited, a neurologist in 20 years? Once I received, the gift of acceptance from God -- I never looked back. I just want this to be of help and inspiration to those recently diagnosed, as one person pointed out in the form, everyone does not die fast with ALS/MND. There are plenty of people diagnosed with terminal illnesses, who survive a long lifespan. I say to people diagnosed with this disease: "the faster you accept your condition, the longer you will survive.". Anger, denial, frustration and aggression will only accelerate the condition!
Good luck to all of you with this disease, we're in this together. And by corresponding, we will give hope.
Andy McGovern.