Uncle Jeff's girl
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- Joined
- Nov 18, 2009
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- Loved one DX
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- Bosie
The following is a poem that I have written to express my experience with having a loved one with ALS. I hope that this helps those in the same situation stop and think about things with a different perspective.
Dear God, Why?!?
Why do loved ones get bad news?
I’m so sorry there is nothing we can do.
I fear life will be short for you.
A man, who thought a mid-life crisis, was his biggest trouble;
is now faced with life’s final struggle.
What a dramatic change in perspective!
Now, the fight is just to live.
It’s amazing how previously perceived mountains
Swiftly transform to beautiful fountains.
After the denial and the anger,
He turns to a little boy born in a manger.
Jesus, what do I do? My kids are still young.
For them, I will fight, until the last bell is rung.
His focus changes to making lasting memories.
From him, life is fleeting, like crisp autumn leaves.
His mind grows keener, but his body forsakes him.
Family and friends struggle with the loss of each limb.
Loved ones come to help him cope.
As they sit he fills them with wisdom and hope.
He now realizes, much of life is wasted preparing for the future.
We must start living, like tomorrow is not for sure.
“I didn’t start living till I found out I was dying.
The past year has been my best.” He said crying.
Now, I cherish each moment, each breath.
I’m thankful for each day I’ve eluded my death.
ALS progresses swiftly.
It pains my loved ones to see.
My body is becoming a cocoon.
My transformation will be complete soon.
I watch those closest grieve.
They sob a tremble as they leave.
Despite my inability to clearly speak,
The wisdom of my journey longs to leak.
I shoot them a comforting wink.
I hope they stop to think.
Out of cocoons, emerge beautiful creatures.
In front of your eyes, I’m budding my angel features.
Patience replaces intolerance.
Peace fills me, not by chance.
Listen closely, uncode my slurred speech.
To you, I am trying to teach.
Over the last year, God has been calling me home.
To think, all my life I thought I was alone.
The disease I once thought was a curse;
will definitely not end in a hearse.
Jesus paved the way.
So forever, with my Father, I can stay.
With this reassuring news,
Jeff shared some life altering views.
I lived my life at such a fast pace.
Only to learn, life isn’t even a race.
From sun up to down, I worked to make money;
when all they wanted was time, ain’t that funny.
After retirement, I imagined vacations with the family to see the result
Just one flaw, my travel agent and God forgot to consult.
Come to find out, in the next year;
I will get a one-way ticket out of here.
As my body starts to lurk,
In my soul, God began his final work.
Events in my life suddenly made sense.
Every time I’d stray, He’d build a new fence.
The more I know,
The more my body begins to show.
With God’s love, I’ve found the key.
From my cocoon, I shall soon be free.
Our mighty God lives within our heart.
Learning to listen is our part.
So the next time you ask God why,
Be sure to listen before you cry.
We are all soft balls of clay,
God is helping us form a little each day.
He will call us home when we are molded.
Until then, keep your hands folded.
-Sabrina McNally
Dear God, Why?!?
Why do loved ones get bad news?
I’m so sorry there is nothing we can do.
I fear life will be short for you.
A man, who thought a mid-life crisis, was his biggest trouble;
is now faced with life’s final struggle.
What a dramatic change in perspective!
Now, the fight is just to live.
It’s amazing how previously perceived mountains
Swiftly transform to beautiful fountains.
After the denial and the anger,
He turns to a little boy born in a manger.
Jesus, what do I do? My kids are still young.
For them, I will fight, until the last bell is rung.
His focus changes to making lasting memories.
From him, life is fleeting, like crisp autumn leaves.
His mind grows keener, but his body forsakes him.
Family and friends struggle with the loss of each limb.
Loved ones come to help him cope.
As they sit he fills them with wisdom and hope.
He now realizes, much of life is wasted preparing for the future.
We must start living, like tomorrow is not for sure.
“I didn’t start living till I found out I was dying.
The past year has been my best.” He said crying.
Now, I cherish each moment, each breath.
I’m thankful for each day I’ve eluded my death.
ALS progresses swiftly.
It pains my loved ones to see.
My body is becoming a cocoon.
My transformation will be complete soon.
I watch those closest grieve.
They sob a tremble as they leave.
Despite my inability to clearly speak,
The wisdom of my journey longs to leak.
I shoot them a comforting wink.
I hope they stop to think.
Out of cocoons, emerge beautiful creatures.
In front of your eyes, I’m budding my angel features.
Patience replaces intolerance.
Peace fills me, not by chance.
Listen closely, uncode my slurred speech.
To you, I am trying to teach.
Over the last year, God has been calling me home.
To think, all my life I thought I was alone.
The disease I once thought was a curse;
will definitely not end in a hearse.
Jesus paved the way.
So forever, with my Father, I can stay.
With this reassuring news,
Jeff shared some life altering views.
I lived my life at such a fast pace.
Only to learn, life isn’t even a race.
From sun up to down, I worked to make money;
when all they wanted was time, ain’t that funny.
After retirement, I imagined vacations with the family to see the result
Just one flaw, my travel agent and God forgot to consult.
Come to find out, in the next year;
I will get a one-way ticket out of here.
As my body starts to lurk,
In my soul, God began his final work.
Events in my life suddenly made sense.
Every time I’d stray, He’d build a new fence.
The more I know,
The more my body begins to show.
With God’s love, I’ve found the key.
From my cocoon, I shall soon be free.
Our mighty God lives within our heart.
Learning to listen is our part.
So the next time you ask God why,
Be sure to listen before you cry.
We are all soft balls of clay,
God is helping us form a little each day.
He will call us home when we are molded.
Until then, keep your hands folded.
-Sabrina McNally
