Old 04-16-2016, 12:56 AM #1 (permalink)
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Default Don't read if you aren't "religious"

Hello lovely people

This is my Final Post. I'm moving on.

Wayne and I are off to Perth shortly to see a neurologist who specifically deals in stroke. I am extremely fortunate to have an appointment with him.

I have been convinced for a while now that my PLS diagnosis is wrong, I really don't fit the symptoms. We'll see.

Anyway I have found myself coming here less and less. I no longer felt I could support people when I really had no clue of the pain and suffering they were/are going through.

A recent thread attacked religion. It felt the final straw. I made a comment, a comment was made back. I felt if I replied I would be starting yet another war in the name of Religion.

I don't think arguing with my beautiful friends here is part of God's plan for me. I think it's His way of telling me it's time to let go of my experience of ALS/PLS.

Don't think this decision to bow out of this forum is easy. It comes with a price. Connection to people here with a love for our Lord has been one of the most valuable times in my life and I have grown so much spending time with you all.

May God continue to carry you all in His loving arms until it's Time, then welcome you in His embrace for eternity.

For those of you left behind, may the Grace of God remain with you and keep you strong.

I will truly miss you all, my tears are for you all, my dear dear friends.
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Old 04-16-2016, 02:29 AM #2 (permalink)
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Default Re: Don't read if you aren't "religious"

Hi Janelle,
I hate to hear that you are leaving the forum. I wish you peace though. I get on here but don't post that much anymore. I wasn't dad's caregiver so I don't feel like I have enough knowledge to give a bunch of advice. Several of my old friends from here have passed on and it hurts alot. Please take care of yourself. Kim
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Old 04-16-2016, 02:39 AM #3 (permalink)
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Default Re: Don't read if you aren't "religious"

Janelle,
I'm very sorry that I indirectly caused you to feel stressed out about staying here. If you feel called elsewhere, however, I certainly understand, and also hope that a more treatable diagnosis bears out for you.

Peace and strength, Green Queen,
Laurie
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Old 04-16-2016, 02:49 AM #4 (permalink)
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Default Re: Don't read if you aren't "religious"

I haven't been reading posts here very long, but what I did read your a very warm and lovely lady and will be missed.
Take care and I'll have my fingers crossed that you were indeed misdiagnosed
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Old 04-16-2016, 03:42 AM #5 (permalink)
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Default Re: Don't read if you aren't "religious"

I hope you get a diagnosis that is better than PLS Janelle, truly I do.

However I'm saddened deeply that you would feel the need to leave because of others comments.
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Old 04-16-2016, 06:54 AM #6 (permalink)
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Default Re: Don't read if you aren't "religious"

Janelle, I love you dearly and while very hopeful that you find another diagnosis, I'm sad to see you leave. You have been a wonderful part of this family (and what family doesn't have their moments). I made a post yesterday that I hope has nothing to do with you leaving--if it does, please PM me. Please please please let us know what you learn and how things go for you. You've become an important part of our lives.

Much love.
Becky
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Old 04-16-2016, 07:30 AM #7 (permalink)
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Default Re: Don't read if you aren't "religious"

You have been a source of hopefulness and compassion in so e dark times. Please take care sweet lady.
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Old 04-16-2016, 11:12 AM #8 (permalink)
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Default Re: Don't read if you aren't "religious"

moved to another thread.

Last edited by scaredwifetx : 04-16-2016 at 12:17 PM Reason: removing
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Old 04-16-2016, 12:55 PM #9 (permalink)
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Default Re: Don't read if you aren't "religious"

I feel like I've missed something here.

Janelle- I hope you get some straight answers from your new specialist. I feel hope that it's not MND and is something that is treatable or reversible. Please come back to let us know the outcome of this much awaited for appointment. I'm cheering you on.

I'm not sure what has happened on the forum for you recently, but I am sorry it doesn't feel welcoming to you. That's a bummer.
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Old 04-16-2016, 03:16 PM #10 (permalink)
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Default Re: Don't read if you aren't "religious"

Janelle, I am really saddened that someone's post would make you leave this forum. You are a caring, supportive person and a true asset to the forum. I hope you will reconsider but whatever you decide, I wish the best for you. I will add you to my prayers, along with many others I have come to know here.

Sharon
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Old 04-17-2016, 08:20 AM #11 (permalink)
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Default Re: Don't read if you aren't "religious"

I am like shiftkicker, what's going on? Janelle I love ya and send the best vibes your way. Take care and let us know how ya are doing from time to Tim if ya want to love ya chally
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Old 04-19-2016, 06:54 PM #12 (permalink)
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Default Re: Don't read if you aren't "religious"

Janelle,

You'll be sincerely missed here. Please let us know what comes of your husbands diagnosis.

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Old 04-19-2016, 08:32 PM #13 (permalink)
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Default Re: Don't read if you aren't "religious"

Hey Sherry, it's Janelle's diagnosis, not her hubby ...

I am hoping Janelle will stay around too
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Old 04-24-2016, 12:03 AM #14 (permalink)
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Default Re: Don't read if you aren't "religious"

Dear Janelle,
I'm sorry to see you leave. Please keep us in your prayers and I will pray for you.
Love, Kim
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Old 04-25-2016, 09:57 AM #15 (permalink)
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Default Re: Don't read if you aren't "religious"

Tillie,
Thanks for correcting me! That makes this forum even more important to Janelle.

Sherry
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