Green Queen
Very helpful member
- Joined
- Mar 30, 2015
- Messages
- 1,304
- Reason
- DX MND
- Diagnosis
- 4/2016
- Country
- AUS
- State
- Western Australia
- City
- By the beach
I have been to see my beautiful physio and OT today.
Other than emotional support and 'checking in' they feel there is not much help they can give me. They have promised not to desert me (yes, I was a little teary when I extracted that promise) and I have total faith they won't.
As fatigue is the underlying issue to everything, they don't want to increase my work load with a heap of exercises which may or may not help.
I am in agreement, with the house, the kids and Wayne to care for, it's already more than I can handle.
There's a fine line between enjoying life as it is....and, well....not enjoying it because I'm always having a Nana Nap.
I am slightly down about it, but know that the love of our God, my family and dear friends will carry me through.
God bless, Janelle x
Other than emotional support and 'checking in' they feel there is not much help they can give me. They have promised not to desert me (yes, I was a little teary when I extracted that promise) and I have total faith they won't.
As fatigue is the underlying issue to everything, they don't want to increase my work load with a heap of exercises which may or may not help.
I am in agreement, with the house, the kids and Wayne to care for, it's already more than I can handle.
There's a fine line between enjoying life as it is....and, well....not enjoying it because I'm always having a Nana Nap.
I am slightly down about it, but know that the love of our God, my family and dear friends will carry me through.
God bless, Janelle x