Poet Chistopher Robin
Distinguished member
- Joined
- Mar 17, 2012
- Messages
- 147
- Reason
- PALS
- Diagnosis
- 06/2011
- Country
- UK
- State
- Tyne and Wear
- City
- Newcastle upon Tyne
God and Motor Neurone Disease
What do we do and just what do we pray
When God made man higher than the Angels I say
Yet God has also gave us illness and disease
Some are truly terrible and take away mans ease
For 30 plus year I’ve walked talked with God now
Today find myself feeling overlooked somehow
I now have this terrible incurable deadly thing
Motor neurone disease and all that it will bring
It will stop me swallowing and speaking too
Stop me from standing and walking its true
It will mean I’ll end up in a bed all my life
Unable to move bringing everyone strife
It affects all of me all bar hearing brain eyes
It’s sad but it seems God doesn’t heed my cries
All I can do is pray for a rapid swift peaceful death
In the hope that God will swiftly take my breath
I have no idea how God now wishes to use me
Maybe through my writing so others will see
See that there is still such a thing as incurable
Maybe let the world know that man is not durable
For every wrong in my life from when I was born
Each makes me twist my face and surely mourn
The only hope that I have now as it seems
Is that I’ll meet Jesus regardless the extremes
Meanwhile I ask every one reading this thought
To let every man know what this has taught
Please publicise this terrible deadly disease
Help out with funding, to help your own ease
Amyotrophic lateral sclerosis it’s one and the same
Any cash funding research will help with their aim
Please stipulate it’s for research and nothing other
You could as yet be helping your father or brother
Pen name Christopher Robin
Copyright Registration TXu 1-598-108
What do we do and just what do we pray
When God made man higher than the Angels I say
Yet God has also gave us illness and disease
Some are truly terrible and take away mans ease
For 30 plus year I’ve walked talked with God now
Today find myself feeling overlooked somehow
I now have this terrible incurable deadly thing
Motor neurone disease and all that it will bring
It will stop me swallowing and speaking too
Stop me from standing and walking its true
It will mean I’ll end up in a bed all my life
Unable to move bringing everyone strife
It affects all of me all bar hearing brain eyes
It’s sad but it seems God doesn’t heed my cries
All I can do is pray for a rapid swift peaceful death
In the hope that God will swiftly take my breath
I have no idea how God now wishes to use me
Maybe through my writing so others will see
See that there is still such a thing as incurable
Maybe let the world know that man is not durable
For every wrong in my life from when I was born
Each makes me twist my face and surely mourn
The only hope that I have now as it seems
Is that I’ll meet Jesus regardless the extremes
Meanwhile I ask every one reading this thought
To let every man know what this has taught
Please publicise this terrible deadly disease
Help out with funding, to help your own ease
Amyotrophic lateral sclerosis it’s one and the same
Any cash funding research will help with their aim
Please stipulate it’s for research and nothing other
You could as yet be helping your father or brother
Pen name Christopher Robin
Copyright Registration TXu 1-598-108