karla r
Distinguished member
- Joined
- Apr 30, 2015
- Messages
- 148
- Reason
- Learn about ALS
- Country
- US
- State
- South Carolina
- City
- roebuck
I am still waiting to know for sure, probably is all the neurologist would say, definitely motor neuron. So, my oldest son came to visit. He went with me to the neurologist. Asked if there was anything that could be done. She answered him with "no." Went on to say eat protein, don't overexert, conserve strength. Fussed a bit because the staff hadn't gotten my power chair evaluation ordered. So, I tried to talk to my sons, about how far I have slid, and that we needed to talk about the future, as it does not seem to be slowing down any. Also, tried to talk to my mom and brother. Moms response was, she can't care for me, which, I had never expected her to. My brother, we will talk about it when we find out for sure. Oldest son, we don't know for sure what it is, so we don't need to talk about it yet. Youngest son, I can't handle this, and he walked out. Are these typical type responses? Thank goodness for my best friend. She talked with me, and called me back a few days later to tell me she was too worried about me being taken care of. She handed in her 2 week notice Friday, and will be moving in in 2 to 3 weeks. She will be looking for a job in my area, so she can be here to help me. We have been friends for 36 years. I'm a widow, having lost my hubby 6 years ago to a stroke when he was 51. We, my best friend and I, are going to try to hash it all out, and write down, to make it easier to go over with my sons when they are finally ready to talk, if they ever are. Oh, they are 28, and almost 33. Is it common for family to react these ways?