codyclan
Distinguished member
- Joined
- Jan 26, 2014
- Messages
- 402
- Reason
- Lost a loved one
- Diagnosis
- 02/2014
- Country
- US
- State
- VA
- City
- Round Hill
Just a rant here about well intentioned folks. My PALS is starting to have issues with is hands, in particular a couple of fingers that are always curled down and that he can no longer lift upward. We have had more than one person suggest that he use a squeeze ball to strengthen his hand muscles and to practice puckering to improve his lip strength. UGH! And when you try to explain that this disease doesn't work like that, they just go, uh huh. Like he's not trying to help himself! He appears pretty functional, so I guess people just think he can control the progression. Anyway, just needed to rant about that!