- Joined
- Aug 28, 2013
- Messages
- 2,869
- Reason
- PALS
- Diagnosis
- 12/2018
- Country
- US
- State
- NC
- City
- Get Real
Golly... there are a couple PALS who post on this Forum I sure hope will lose their anger when it comes (or eventually comes) to their caregivers.
I may not have experience in the area of ALS. But I sure do in another horrible disease.
In my Forum Bio Interest I could have added, “I am also a caregiver.” My wife is in the late early stage of Alzheimers Disease. A confirmed diagnosis. She takes all the Alzheimers meds that can be prescribed at this point. Everything is in place for her to receive the help (benefits) she will need in the future. She went through a long extensive process until the day her neurologist finally told her. “You have Alzheimers Disease.” We both cried. To this day, I sometimes see, she has days she is in denial. In a weird way… that’s good. Alzheimers is a very slow fatal disease.
I do know something about a fatal disease and the “confirmed” diagnostic process. We could not have got the things in place she will need in the future without a confirmed diagnosis. At least, now, that is a little peace of mind knowing that all will be approved and ready to go when needed. I do not write for sympathy. We deal with things “One day at time.” and make the best of each day. So, when I post about "confirmed diagnosis" it comes from experience and a few other areas concerning a horrible disease