HeartbrokenInNM
Member
- Joined
- Jan 20, 2012
- Messages
- 23
- Reason
- Loved one DX
- Country
- US
- State
- NM
- City
- Albuquerque
Unfortunately, the post titled "Skin is Boiling" is closed so I can't respond there so I'll start this new thread.
I doubt most people here need another lesson on ALS's vicious toll on people but this is nevertheless a very poignant one. I have spent most of the last year reading the many informative and compassionate posts here and have until recently been quite struck by the positive attitudes of those here.
A couple of weeks ago, I posted that I wanted to help someone afflicted in some small way. My wife of 22 years has bulbar-onset ALS but at this point is still quite independent and won't let anyone do anything for her that she can do for herself. Other than a cure, she has everything she could possibly need at all times. She is doted on to what level she will allow at all times -- usually by me but occasionally by others. If there is any doubt, following is a part of an e-mail she sent me just the other day.
I read many posts and realized how overwhelmed people can be and with a ton of compassion for sufferers and a small amount of time to give, I just wanted to help in some small way. After that post, I was viciously attacked on multiple fronts by several people who I can only assume have allowed ALS to color their judgment. What on earth is wrong with you people?
I am not a troll, I am not someone looking to prey upon others, I am not someone who has no compassion for his own suffering wife. I just wanted to help and wanted nothing in return and for that I was maligned and my character literally assassinated. After some further clarification, I was apologized to by many of those that posted nasty responses but this thread that I just came across is well beyond the pale. To those that posted negatively in response to my original post, your sense of right and wrong was not taken by ALS -- you willingly gave it away.
Despite the nastiness of some of you I did indeed find an opportunity to help someone and will continue to give what I have to my wife first and others in need as long as I have strength in my body, compassion in my heart and bandwidth to spare. I -- unlike many of you -- will not allow this horrible disease to take away one of the things I cherish about myself and that is my compassion for others. Many of you should be truly ashamed for your posts.
This is my last post on this forum. I will still come here from time to time but you will not read anything else from me. I hope you're all proud of yourselves.
I doubt most people here need another lesson on ALS's vicious toll on people but this is nevertheless a very poignant one. I have spent most of the last year reading the many informative and compassionate posts here and have until recently been quite struck by the positive attitudes of those here.
A couple of weeks ago, I posted that I wanted to help someone afflicted in some small way. My wife of 22 years has bulbar-onset ALS but at this point is still quite independent and won't let anyone do anything for her that she can do for herself. Other than a cure, she has everything she could possibly need at all times. She is doted on to what level she will allow at all times -- usually by me but occasionally by others. If there is any doubt, following is a part of an e-mail she sent me just the other day.
You are compassionate, strong and supportive. My personality is independent and I go half-cocked into a situation and I know you will be there when I fail. You [are] my once in a lifetime Teddy Bear. No one has given [me] the support and the love that you have given. You accept [me] for who I am and let me grow in [to] the beautiful woman I am today. You bring out the best in me. You saw me through the worst times in my life and I [am] forever grateful and you are protecting me now. I am strong and positive because of you. I lived a life that [is] full. We saw wonderful things and had [a] great time doing it. I knew my life would be short and I don’t waste time being angry.
I read many posts and realized how overwhelmed people can be and with a ton of compassion for sufferers and a small amount of time to give, I just wanted to help in some small way. After that post, I was viciously attacked on multiple fronts by several people who I can only assume have allowed ALS to color their judgment. What on earth is wrong with you people?
I am not a troll, I am not someone looking to prey upon others, I am not someone who has no compassion for his own suffering wife. I just wanted to help and wanted nothing in return and for that I was maligned and my character literally assassinated. After some further clarification, I was apologized to by many of those that posted nasty responses but this thread that I just came across is well beyond the pale. To those that posted negatively in response to my original post, your sense of right and wrong was not taken by ALS -- you willingly gave it away.
Despite the nastiness of some of you I did indeed find an opportunity to help someone and will continue to give what I have to my wife first and others in need as long as I have strength in my body, compassion in my heart and bandwidth to spare. I -- unlike many of you -- will not allow this horrible disease to take away one of the things I cherish about myself and that is my compassion for others. Many of you should be truly ashamed for your posts.
This is my last post on this forum. I will still come here from time to time but you will not read anything else from me. I hope you're all proud of yourselves.