panguinjen
Senior member
- Joined
- Mar 27, 2012
- Messages
- 529
- Reason
- Lost a loved one
- Country
- US
- State
- CA
- City
- Stockton
Got a letter in the mail yesterday from the company that delivered Rog's BiPap machine in Jan. with some ultimatums that are frying my gizzards.
Rog has had problems with the mask they gave him as he feels he is drowning in his saliva at night. I told thr RT from this company about the issue and asked for a different mask. I was told that insurance will not allow him to try masks and to " do the best he could with the current mask". This occurred while Rog was getting his tube placed, then there was the trouble he had with the tube and ooze....Rog stopped using the machine because he was having panic attacks about drowning, school was insane for me, we've had two weddings and have been gone a lot. I let dealing with the BiPap slide except for encouraging Rog to use it sitting up while he eats. We leave for Europe on Tues. and Rog needs the machine on the plane.... Doctors notes have been written, airlines notified, cruise line notified, 15 million conversations have been had about coping with his ALS.
Then we get this letter (not dated) from the local office saying that we have to send the usage disc in to them within 5 business days and the usage had to show 4+ hours per 24 hr period 70% of the time. If it doesn't, we'll have to pay for the machine or give it back to them. Well, I checked our documentation they gave me, checked the documentation from the insurance company and nowhere did I find usage requirements; and needless to say we're not going to meet those requirements. Rog is worrying because he's afraid we're going to be on a plane and he won't be able to breathe.....(this is the rant)
Our case manager from the insurance company called today (this is the rave) to check in as she does every couple of weeks.... I explain the letter to her, explain we're not going to meet the requirements and why (she remembers a conversation we had about the mask and she suggested asking for another mask). She said don't send the disc as the letter isn't dated or signed (just stuck in an envelope with a bunch of "gotta do's" highlighted in yellow). She is going to deal with the local office and their illegal letter, get some masks to try when we get back, and raise some h311 with the higher ups of this national company. Woohoo, this woman is amazing!
This national company has been amazing except for our local office... The office has hung up on me, lost prescriptions, sent the wrong equipment out more than once and their RT is not a teacher... (here's your machine, plug it in and you're good to go....). Aaaarrrggghhh
Jen
Rog has had problems with the mask they gave him as he feels he is drowning in his saliva at night. I told thr RT from this company about the issue and asked for a different mask. I was told that insurance will not allow him to try masks and to " do the best he could with the current mask". This occurred while Rog was getting his tube placed, then there was the trouble he had with the tube and ooze....Rog stopped using the machine because he was having panic attacks about drowning, school was insane for me, we've had two weddings and have been gone a lot. I let dealing with the BiPap slide except for encouraging Rog to use it sitting up while he eats. We leave for Europe on Tues. and Rog needs the machine on the plane.... Doctors notes have been written, airlines notified, cruise line notified, 15 million conversations have been had about coping with his ALS.
Then we get this letter (not dated) from the local office saying that we have to send the usage disc in to them within 5 business days and the usage had to show 4+ hours per 24 hr period 70% of the time. If it doesn't, we'll have to pay for the machine or give it back to them. Well, I checked our documentation they gave me, checked the documentation from the insurance company and nowhere did I find usage requirements; and needless to say we're not going to meet those requirements. Rog is worrying because he's afraid we're going to be on a plane and he won't be able to breathe.....(this is the rant)
Our case manager from the insurance company called today (this is the rave) to check in as she does every couple of weeks.... I explain the letter to her, explain we're not going to meet the requirements and why (she remembers a conversation we had about the mask and she suggested asking for another mask). She said don't send the disc as the letter isn't dated or signed (just stuck in an envelope with a bunch of "gotta do's" highlighted in yellow). She is going to deal with the local office and their illegal letter, get some masks to try when we get back, and raise some h311 with the higher ups of this national company. Woohoo, this woman is amazing!
This national company has been amazing except for our local office... The office has hung up on me, lost prescriptions, sent the wrong equipment out more than once and their RT is not a teacher... (here's your machine, plug it in and you're good to go....). Aaaarrrggghhh
Jen