notgivnup
Senior member
- Joined
- Nov 8, 2010
- Messages
- 833
- Reason
- PALS
- Diagnosis
- 11/2010
- Country
- OS
- State
- Darkside of Moon
- City
- country
Ok, I am here to blow some steam off. Don’t usually do this much but I am sooo TIRED of all the hoops I am having to go thru! And keep getting told go back redo that hoop or that one and the ONE..on and on and on it goes. Why is it so hard to get the equipment I need? You would think I was asking for the President’s Heart for Transplant! It has been 2 months trying to get a power chair, finally got measured, but in the month and a ½ since PT visit it has become so hard to keep sitting up so the tech for wheelchair said PT did not say to have tilt for this condition, and to just give him a call, simple enough. But no..called, they said I have to get another referral from neuro, called ..they will get back to me. Then to call PT tomorrow. Why oh why, I know I am not to ask WHY. Don’t they know this is hard enough! I am just soooo frustrated! I now feel like GivenUP! Thinking hell will freeze over before someone really has my best interest at heart.
And to add to the mix, reason neuro referred me back to Pulmo was so I could get a Bi-pap thinking it would help me, but no, he was surprised when I told him yesterday Pulmo saw no reason at this time, even with the sleeping problem, no energy, and morning headaches. Neuro says to try and get one, that means Another referral back to Pulmo who said see ya in 3 months. This is getting too hard for me to deal with, I feel like just climbing under a rock till this goes AWAY!
Will have to revert back to Denial or jump full on into humor for survival…and become the crazy lady!..If I have enough strength left!, they have Sucked the Life out of me it feels. AHHHHH! I HATE this disease! It SUCKS!
I am so tired of it ALL! Just dont want to do this any More!
Ok, DONE nuff said….:-(
And to add to the mix, reason neuro referred me back to Pulmo was so I could get a Bi-pap thinking it would help me, but no, he was surprised when I told him yesterday Pulmo saw no reason at this time, even with the sleeping problem, no energy, and morning headaches. Neuro says to try and get one, that means Another referral back to Pulmo who said see ya in 3 months. This is getting too hard for me to deal with, I feel like just climbing under a rock till this goes AWAY!
Will have to revert back to Denial or jump full on into humor for survival…and become the crazy lady!..If I have enough strength left!, they have Sucked the Life out of me it feels. AHHHHH! I HATE this disease! It SUCKS!
I am so tired of it ALL! Just dont want to do this any More!
Ok, DONE nuff said….:-(