Please slow down

[handinhand]

Today has been an interesting one...lots of new symptoms this past few weeks. More twitches going on in different places...as I am sitting here,I am having them all over my rib cage...at first I thought they felt like when I was pg with my babies...the kinda rolling sensation.. Nope can't be that... As they keep jumping around and not going away? I know what they are? The dreaded twitches... Oh, I wish this would slow down...sigh! Lin:-

 

[KeeKer]

So sorry to hear of your new developments! Maybe they will give you that 6 pack look?(trying to find a good outlook for you)

 

[Ladyinn]

Linda, I too have been having twitches in places I never had them before.... diaphragm being one that is causing me some concern. I thought it was a baby kicking at first also and knew it couldn't be possible (thank goodness!) Now I am wondering what will happen next. Any ideas? Diane

 

[abbas child]

I hope it will help you to know I've had them throughout the abdomen, then added the chest. Oops, one just kicked in my collar bone region...the first armpit twitches (just had one in left pit) began by Nov. 08...and while it made me laugh (the lunacy), I was somehow offended that the Neuro also laughed, and admitted he'd never heard of that before. Hmmm.

Diane, I don't think anyone knows where or when. We're all so delightfully different... delightfully so because that means there's (nearly) always who's been there before and can give advice...or sympathy, depending.

Hugs, you guys.

 

[handinhand]

So is it unusual to have this movement in the stomach,ribs back ... Wonder why your dr laughed?.if things go the way my hands have gone? It would mean twitching for a year then the scary part would be when it stops twitching. L

 

[abbas child]

Well, I figure as long as I'm twitching, there's life in that area. I'm no longer aware of any twitching near my feet... and my hands occasionally just spasm, whereas my arms twitch and cramp... stomach also cramps, but was doing that when I was diagnosed. We all have our own set of bad scenarios. I sort of think it makes sense that my front and back would go as a set at the same time. It doesn't worry me especially. Getting weaker is much more of a problem that impacts my life.

My doctor is no longer my doctor, since an ALS Clinic opened just a few miles from here. I think he laughed because he lacks something... social skills at the very least. I'm simply grateful one of his partners is doing the clinic. That said, the Pulmonary doctor is my head doctor now... and he's adorable... about seventy with dry humor. We had a great time... and it's his office I deal with, so it's turned out well.

In it's own way, the twitching becomes a blessing because by the time that area is weak enough to become apparent, the twitching has me prepared and accepting.

 

[Ladyinn]

I guess the twitches are not the scarey part but it is knowing that the areas with the twitches are deteriorating.. Funny thing is I don't remember any twitching before I lost the use of my left arm a year or so ago. Maybe I just forgot or didn't pay attention. Ignorance was bliss, I suppose. :|

 

[abbas child]

Yes, Diane. I remember way, way back in 05 having and reporting twitches in my legs, and I may as well have said 'oh, and my thumb has a hangnail' for all the attention it got. You're right about the "scary part" being advance knowledge... and I can't speak for anyone else, but although so much is twitching now, it's now just another accepted fact. At one time there were things I didn't think I could live without--and I'm sure that's true for most of us, but your life adapts and, well-- being here is a case in point. This is really another family... and, I'm blessed to have a crew of folks I know well who have servant's hearts, who can't wait to find out more they can do to help. I'm checked on in person every day, and on Thursdays, it's a revolving door here. I never would have had the depth of these relationships without ALS. They share stuff with me all the time that amazes me. Friends before but family now.
Hugs to you.

 

[Ladyinn]

Funny you should mention the new friends and relationships that you have developed since ALS. I just told a friend today that I feel so blessed since getting a diagnosis - Now I am enjoying the moment, meeting new people and developing some really wonderful relationships with folks who are helping me. I do believe that when one door closes another opens and all we have to do is walk thru it to find happiness. Don't get me wrong - there is still a bit of fright if I allow myself to go there so I try hard to stay in the today mode of thinking. Thanks for your thoughts and encouragement. You are one of the bright spots in my day. Hugs, Diane

 

[abbas child]

Thank you, Diane. Living in the moment really is helpful. There's a lot of encouragement in the Christian thread if you're interested. I'm so glad you're finding help and meaningful relationships. This site is really a place of refuge. All these things together make it so much easier. Smile. Ann

 

[handinhand]

Ann and Diane , it is so true. Where can we get straight forward answers for the many questions we have? Always some one here for us no matter what time of the day or night...thanks for being here for me today...hugs, Linda

 

[sadiemae]

My husband has been allowing this"bit of fright" to invade his thoughts. A couple of days ago, he told me "It sucks to be me" What can I say to that? For a man who used to be so active, to now, not be able to do hardly anything, it does suck. We live in Reno,NV so we have a lot of entertainment here, but he is just so very bored. Next week we have free tickets to Carrie Underwood, and we will stay at the Hotel/Casino for 2 nites. (4 miles from home) HUGS Lori

 

[handinhand]

Hi Lori ,I hope u have a wonderful time. I really like her... Oh I know how he feels...I want to say to rich that I am so sorry that this terrible decease I have has effected his life so much..the sorrow I see in his eyes whenever He looks at me instead of all the things I would do to make him smile or laugh...I think I feel more sorry for him and my kids than I do for myself....it is awful how it effects all of us....hugs to you, Linda

 

[irismarie]

But the evidence that I twitcvh soooooooooooooo much worse and far more widespread when I am tired and when I am stressed I feel should be a lesson. Not to become either tired or stressed. Then the twitching wil be less and it may slow down. It's a kind of logic.........
Love to you all

 

[sadiemae]

To Iris, our new logic QUEEN!HUGS Lori