FrancesA
New member
- Joined
- Sep 8, 2009
- Messages
- 3
- Reason
- PALS
- Diagnosis
- 08/2009
- Country
- US
- State
- OR
- City
- Banks
In the last two weeks, I've been diagnosed with familial ALS. Been having symptoms for several months & finally realized it wasn't getting better and started the process of getting answers. Really expected it to be MS and not ALS. Mom has MS. Dad, Grandpa, great-grandpa, aunt, and a couple of dad's cousins had ALS.
ALS Specialist confirmed the ALS diagnosis last week. It has been a heck of a couple of weeks. I have two small children (age 7-1/2 and nearly 5). My 7-1/2 year old is a childhood cancer survivor. Diagnosed with Ewing's Sarcoma April 2005, underwent a year of treatment and has been 3-1/2 years cancer free. Side-effects, however, are tremendous.
Are there familial ALS patients/caregivers on this forum?
Started Rilutek this week. Thinking of joining the Arimoclomol trial. Any thoughts?
ALS Specialist confirmed the ALS diagnosis last week. It has been a heck of a couple of weeks. I have two small children (age 7-1/2 and nearly 5). My 7-1/2 year old is a childhood cancer survivor. Diagnosed with Ewing's Sarcoma April 2005, underwent a year of treatment and has been 3-1/2 years cancer free. Side-effects, however, are tremendous.
Are there familial ALS patients/caregivers on this forum?
Started Rilutek this week. Thinking of joining the Arimoclomol trial. Any thoughts?