Jaded-1
Active member
- Joined
- May 2, 2009
- Messages
- 31
- Reason
- Learn about ALS
- Diagnosis
- 05/2009
- Country
- US
- State
- IL
- City
- Chicago
I am scheduled for my second opinion at the ALS clinic at the Univ of Chicago tomorrow....
Anyone have some encouraging words (especially anyone misdiagnosed after consult and emg from a MND neuro). I have already had my CK and full rheuma/endocrin workups. (2 different labs as well since I switched care midstream after I hit 40 lbs weight loss and felt every test confused my rheumatologist more)
Also... What questions should I ask? Did anyone leave a clinic saying.. I wish I would have asked....
And... any good tips or funny story on how do I deal with the denial? I am getting worse and have convinced myself they are wrong. My endocrinologist told me I have to stop dwelling on the diagnosed and move onto treatment options and I have no clue how to transition.
Anyone have some encouraging words (especially anyone misdiagnosed after consult and emg from a MND neuro). I have already had my CK and full rheuma/endocrin workups. (2 different labs as well since I switched care midstream after I hit 40 lbs weight loss and felt every test confused my rheumatologist more)
Also... What questions should I ask? Did anyone leave a clinic saying.. I wish I would have asked....
And... any good tips or funny story on how do I deal with the denial? I am getting worse and have convinced myself they are wrong. My endocrinologist told me I have to stop dwelling on the diagnosed and move onto treatment options and I have no clue how to transition.