Hello friends,
I went to IU for my 3rd
ALS clinic visit this past Tues, 2/17/09. Here is my brief update:
My FVC is 77% and my NIF is 88%, my reflexes are still brisk, my strength in arms, hands, feet, legs are all still strong. My weight is stable, my speech is awful, we talked about the advantages of a peg tube in the future, we also talked about the cephtriaxone study that my neuro will have available in the spring.
I couldn't find if I had put this on here already, so I apologize if it's a repeat.
No talk about a trach yet, but I do notice episodes of shortness of breath after minimal exertion. My disability should start in Aug 09 if I don't mess up and work too many hrs. The pt advocate put me on the walk committee so I'm going to my first meeting for that this coming Tues.
Today my 18 yr old son, as well as a friend that I talk to about every 2 weeks, both commented that my speech was better! that's always a good thing,
I know my speech is not better, maybe I'm just taking my time more now. I may still have
ALS, but it sure doesn't have me!
Never give up,
Never let up,
Never lose faith,
brenda
My 3rd clinic visit update 
