I want to thank you all for your e-mails and messages of concern and comfort for my grandson and my daughter. They have toucher her heart and helped lift her up when she needed it the most.
We finally got the blood ready for the surgery and did manage to get some insurance coverage for part of the procedures. The one main thing that still is a major problem is the cost of the helmets, $2400 each and he will need several as he grows, is not covered by the insurance. Also one of the major surgeons is asking for his money up front.
I just spoke with my daughter and she said someone from the forum had offered to help with the costs involved, but she did not feel like she can accept money from anyone who is facing
ALS. She knows the expense of what we are going through is high and she said her conscious will not allow her to accept money from anyone who needs it for themselves.
So we appreciate the offer, and thank you for it, but I wanted to try to explain why she turned it down. She is believing God will open a door somewhere to meet the need, just like He has met every need we have had since hurricane Katrina. I hope you can understand how she feels about this.
My wife and I will be with her at Children's Hospital in New Orleans when Lil Daniel has the surgery on the 12th. I will try to keep you updated. They moved the surgery to this hospital instead of Oschners because the doctors there have more experience with this type of surgery.
Here is a picture of my granddaughter Isabella feeding Lil Daniel and one of him Laughing.
God Bless
Capt AL