ALSFORUMS.COM   - ALS/MND Support Group   - PLS Support Group   - PBP Support Group   - PMA Support Group   - Donate to ALSForums

Go Back   ALS/MND Support Group Forums > ALS and MND Support Group > People With ALS - "PALS"

Reply
Bookmarks:
Share |
 
LinkBack Thread Tools
Old 10-02-2007, 07:28 PM   #16 (permalink)
Member
Registered Member
Join Date: 2006
City: Flint
State: Michigan
Country: USA
Posts: 353
Peg B is on a distinguished road
Default

Hi Capt. Al,

Please know my prayers are with you and your family. Sincerely, Peg
Peg B is offline   Reply With Quote
Old 10-02-2007, 07:42 PM   #17 (permalink)
Very Helpful Member
Registered Member
MtPockets's Avatar
Join Date: 2006
City: Gulfport
State: Ms
Country: USA
Diagnosed: 05/2006
Posts: 1,819
Blog Entries: 4
MtPockets is on a distinguished road
Post

You have no idea what it means to me and my daughter that you are supporting us with your prayers. It is at times like this when we really feel a part of the extended family of God.

Thank you, Thank you, So much.

If any of you would like to encourage her with an email she can be reached at:
mom@funnylookinghead.com
You also can leave her a message by signing her guest book at her website http://www.funnylookinghead.com/

Thanks AL for your wonderful comments and the all the others.

God Bless
Capt AL
MtPockets is offline   Reply With Quote
Old 10-02-2007, 09:57 PM   #18 (permalink)
Member
Registered Member
Join Date: 2007
City: Stafford
State: VA
Country: USA
Diagnosed: 03/2008
Posts: 149
pmbenb83 is on a distinguished road
Default In our prayers

Hi Al,
I'm so sorry to hear about your little grandson. It sounds like the doctors caught it early, which is a good thing. I will say an extra prayer for your family and especially for little Daniel.

Take care.
Pam B in Va
pmbenb83 is offline   Reply With Quote
Old 10-02-2007, 10:55 PM   #19 (permalink)
New Member (Say Hi)
Registered Member
cheryilyn's Avatar
Join Date: 2007
City: Salem
State: Oregon
Country: USA
Diagnosed: Sept. 06
Posts: 63
cheryilyn is on a distinguished road
Default

what a beautiful baby. my prayers are with you and your family.
cheryilyn is offline   Reply With Quote
Old 10-03-2007, 11:22 PM   #20 (permalink)
Member
Registered Member
trustinggod's Avatar
Join Date: 2006
City: Lake Forest
State: CA
Country: USA
Diagnosed: 00/0000
Posts: 167
trustinggod is on a distinguished road
Send a message via AIM to trustinggod
Default

Capt. Al,

I am sorry for all your family is going through.

You can count on my prayers for your grandson and your entire family.
I am going to forward the information on to our couples bible study group and ask them to pray as well.

Thanks for sharing the web site information.

God Bless you real good.
Jeanne
trustinggod is offline   Reply With Quote
Old 10-04-2007, 03:57 PM   #21 (permalink)
Very Helpful Member
Registered Member
MtPockets's Avatar
Join Date: 2006
City: Gulfport
State: Ms
Country: USA
Diagnosed: 05/2006
Posts: 1,819
Blog Entries: 4
MtPockets is on a distinguished road
Post Update on Capt AL Grandson Surgery

The Doctors are telling us now that they were able to catch it so soon, they will be able to do the surgery Laproscoply, I do not know how to spell that word, but you get the idea. They will not have to open his skull up all the way, but will go in and break the bones and spread them apart so his little brain can have room to grow.

He will still have to wear the head helmets. $2400 each, for years and will have to have numerous other surgeries. They are still concerned about him being under the anesthesia, since he is so young. We are having to get together blood for the operation this week, so they will have it on hand. They say it is a very serious surgery. So please remember him, Lil Daniel in your prayers.

If you can visit my daughters website at http://www.funnylookinghead.com
It will mean a lot to her if you can sign the guest book. Thanks so much everyone.

God Bless
Capt AL
MtPockets is offline   Reply With Quote
Old 10-04-2007, 08:43 PM   #22 (permalink)
Member
Registered Member
Beebe's Avatar
Join Date: 2006
City: forked river
State: new jersey
Country: oce
Diagnosed: 4/2006
Posts: 366
Beebe is on a distinguished road
Default Capt Al

Hi Capt Al, We here in New Jersey want you to know our thoughts and prayers are with you , your lil grandson and family. It seems there is more and more illness among the young especially. We have a full plate here and know what you are going thru. Bless you. Fondly, Beebe
Beebe is offline   Reply With Quote
Old 10-05-2007, 03:24 PM   #23 (permalink)
Very Helpful Member
Registered Member
MtPockets's Avatar
Join Date: 2006
City: Gulfport
State: Ms
Country: USA
Diagnosed: 05/2006
Posts: 1,819
Blog Entries: 4
MtPockets is on a distinguished road
Post

I want to thank you all for your e-mails and messages of concern and comfort for my grandson and my daughter. They have toucher her heart and helped lift her up when she needed it the most.

We finally got the blood ready for the surgery and did manage to get some insurance coverage for part of the procedures. The one main thing that still is a major problem is the cost of the helmets, $2400 each and he will need several as he grows, is not covered by the insurance. Also one of the major surgeons is asking for his money up front.

I just spoke with my daughter and she said someone from the forum had offered to help with the costs involved, but she did not feel like she can accept money from anyone who is facing ALS. She knows the expense of what we are going through is high and she said her conscious will not allow her to accept money from anyone who needs it for themselves.

So we appreciate the offer, and thank you for it, but I wanted to try to explain why she turned it down. She is believing God will open a door somewhere to meet the need, just like He has met every need we have had since hurricane Katrina. I hope you can understand how she feels about this.

My wife and I will be with her at Children's Hospital in New Orleans when Lil Daniel has the surgery on the 12th. I will try to keep you updated. They moved the surgery to this hospital instead of Oschners because the doctors there have more experience with this type of surgery.

Here is a picture of my granddaughter Isabella feeding Lil Daniel and one of him Laughing.

God Bless
Capt AL
Attached Thumbnails
Christians Here To Help You And Talk-laughdaniel.gif  
MtPockets is offline   Reply With Quote
Old 10-05-2007, 04:05 PM   #24 (permalink)
New Member (Say Hi)
Registered Member
Join Date: 2007
City: z
State: MI
Country: USA
Diagnosed: 00/0000
Posts: 39
suebo is on a distinguished road
Default

I believe in the power of prayer. God promises to never leave us--even in the toughest of times. I wuill be praying for your family and grandson.

Sue
suebo is offline   Reply With Quote
Old 10-05-2007, 06:02 PM   #25 (permalink)
Moderator
Registered Member
Join Date: 2006
City: Anytown
State: New England
Country: USA
Diagnosed: 00/0000
Posts: 3,823
CindyM is on a distinguished road
Default

What sweet children. Little Dan looks like he is bursting with personality. Does he by any chance take after Grampa? Cindy
CindyM is offline   Reply With Quote
Old 10-05-2007, 06:27 PM   #26 (permalink)
liz
Senior Member
Registered Member
liz's Avatar
Join Date: 2006
City: Albany
State: NY
Country: USA
Diagnosed: 11/2006
Posts: 722
liz is on a distinguished road
Default

No way Cindy, he looks like trouble with a capital T to me.

At the very least, he's so cute it ought to be against the law!
liz is offline   Reply With Quote
Old 10-05-2007, 10:57 PM   #27 (permalink)
Al
Super Moderator
Registered Member
Al's Avatar
Join Date: 2004
City: NW of Toronto
State: On
Country: CAN
Diagnosed: 10/2003
Posts: 7,192
Al is on a distinguished road
Send a message via Yahoo to Al Send a message via Skype™ to Al
Default

Does anybody know any big shots in the SHRINERS or Masonic Lodge? They raise money for Childrens Hospitals and I would think this would be a good cause for them to jump in on.
AL.
Al is offline   Reply With Quote
Old 10-06-2007, 09:39 AM   #28 (permalink)
Moderator
Registered Member
Join Date: 2006
City: Anytown
State: New England
Country: USA
Diagnosed: 00/0000
Posts: 3,823
CindyM is on a distinguished road
Default

Great tip, Al! BTW< How is the weather up north? We are having summer-like days. I spend every minute I can on the deck to soak up what sun remains before the snows come! Cindy
CindyM is offline   Reply With Quote
Old 10-06-2007, 02:06 PM   #29 (permalink)
Very Helpful Member
Registered Member
MtPockets's Avatar
Join Date: 2006
City: Gulfport
State: Ms
Country: USA
Diagnosed: 05/2006
Posts: 1,819
Blog Entries: 4
MtPockets is on a distinguished road
Post

The baby must take after his mother, I noticed he does not have a Grey beard like me, yet......

We have tried them all and so far no help. I thought it was for things just like this that we donated to the United Way and other groups over the years, but no one is coming forward yet, and the 12th is closing in on us fast.

He laughs a lot. He just seems to be a happy child. Wasn't it great to be that innocent at one time in our lives?

As you can see his next biggest sister loves to try to take care of him. They have 2 boys and 2 girls. The oldest boy is 16 year old.

I hope everyone has a wonderful weekend. Enjoy your families while you can.

God Bless
Capt AL
MtPockets is offline   Reply With Quote
Old 10-07-2007, 11:46 AM   #30 (permalink)
Al
Super Moderator
Registered Member
Al's Avatar
Join Date: 2004
City: NW of Toronto
State: On
Country: CAN
Diagnosed: 10/2003
Posts: 7,192
Al is on a distinguished road
Send a message via Yahoo to Al Send a message via Skype™ to Al
Default

Most of you foreigners are probably unaware that it is Thanksgiving up here in Canada this weekend. Monday is the actual day. We went to the Fall Fair yesterday and it was 85 and a bit humid. Very not normal. Today is cloudy and about 70. We have had snow flurries at the fair in other years. Maybe there is something to this global warming thing. We are trying a deep fried turkey today for the first time. Supposed to be good from what I here.
AL.

Last edited by Al : 10-07-2007 at 11:47 AM
Al is offline   Reply With Quote
Reply

Tags
back, burning, choking, eye, father, problem, story, wheelchair, wrong


Currently Active Users Viewing This Thread: 2 (0 members and 2 guests)
 
Thread Tools


Similar Threads for: Christians Here To Help You And Talk
Thread Thread Starter Forum Replies Last Post
I need a pep talk pldo Do I Have ALS? Is This ALS? 2 01-29-2008 09:48 PM
Looking for someone to talk to who has been diagnosed with PLS jnewman34 General Discussion About PLS 40 08-27-2007 09:36 PM
time to talk ms.illini Welcome New Members - Say Hello 46 02-17-2007 11:43 AM
Need to talk!. slm455 General Discussion About ALS/MND 7 08-10-2006 08:46 PM


    
   
   
   
  ALSforums - Get help and support with ALS/MND   


no new posts