Old 04-12-2019, 06:58 PM #1 (permalink)
Idaho2790's Avatar
Member
 
Join Date: 2017
City: Leadore
State: Idaho
Country: US
Diagnosed: 01/2018
Interest: I have been diagnosed with ALS.
Posts: 114
Idaho2790 is on a very distinguished road
Idaho2790 Idaho2790 is offline
Member
Idaho2790's Avatar
Join Date: 2017
City: Leadore
State: Idaho
Country: US
Diagnosed: 01/2018
Interest: I have been diagnosed with ALS.
Posts: 114
Idaho2790 is on a very distinguished road
Default Very Fast Progression

I was originally diagnosed with progressive bulbar palsy in January of 2018. At that time we were told that there was an excellent possibility of having several years before things really became troublesome. In April 2018 I had a PEG put in and speaking was no longer a possibility. My legs have been spastic at night and my right leg has a drop foot. These things we have been able to work around and, although not the ideal life we had, they were tolerable.

Five days ago my husband called 911 for an ambulance. I couldn't walk for pain and was vomiting. Jevity has never been a past issue. I was just released this afternoon. My vision is poor, my stability even with a walker isn't good and both hands are losing control of a pen to write.

When first diagnosed, PBP on the net indicated that this was a fast progressive type of ALS. Is that the feeling from others who have Bulbar onset?
Idaho2790 is offline   Reply With QuoteReply With Quote
Reply

Tags
ability, bulbar, bulbar onset, diagnosed, foot, life, night, onset, pain, pbp, peg, progression, vision, vomiting, walker, work


Currently Active Users Viewing This Thread: 1 (0 members and 1 guests)
 
Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Trackbacks are On
Pingbacks are On
Refbacks are Off

Similar Threads
Thread Thread Starter Forum Replies Last Post
Fast progression AliCat Current Caregivers (CALS) 5 10-15-2018 04:53 PM
does my progression seem fast to you? landofsmiles People With ALS - "PALS" 5 01-21-2011 11:27 AM
Fast Progression? APL55 Do I Have ALS? Is This ALS? 4 07-23-2010 06:14 PM
very fast progression jessB General Discussion About ALS/MND 35 02-24-2009 10:27 AM
why the progression is fast azita General Discussion About ALS/MND 4 01-30-2006 02:04 AM


All times are GMT -5. The time now is 08:08 AM.

 

Who we are

"We are a volunteer-driven online community that originated in 2003. We are a resource for anyone affected by ALS and MND. We are a community of like-minded and compassionate individuals. Together we are the ALS Forum and together we build this online resource and online community."

 

Want to help?

Have you found our website helpful? Do you enjoy having a place to talk to people that are knowledgeable about ALS and MND? If you have found it helpful to chat with people at different stages of the ALS/MND journey we encourage you to get involved.

Copyright © 2016