Idaho2790
Distinguished member
- Joined
- Dec 22, 2017
- Messages
- 150
- Reason
- PALS
- Diagnosis
- 01/2018
- Country
- US
- State
- Idaho
- City
- Leadore
I was diagnosed with progressive Bulbar Palsy I. January 2018. Although I could no longer swallow or speak by April of 2018, a PEG. helped and things were ok until Christmas of 2018. My limbs are weakening but I’m making the best of that. My biggest worry is my eyes. Even after sleeping well with a BiPap for 10 hours, I have trouble keeping my eyes open. If I read, they close. Is this something that is normal? Because my hands are weakening, I feel it won’t be too long before I may need an assist with a Tobii eyegaze or something similar.it has occurred to me that maybe there are muscles causing this new obstacle,