billybob
Active member
- Joined
- Jan 18, 2016
- Messages
- 32
- Reason
- PALS
- Diagnosis
- 09/2017
- Country
- US
- State
- FL
- City
- The Villages
I have now been advised to have a PEG port placed in my stomach since my breathing has taken a turn for the worse. I can still eat and drink, but I was told my FVC was now down to 50% so it's time to do this procedure before my breathing becomes even more compromised. The procedure would be done at the Univerity of Florida Health/Shands in Gainesville. Has anyone experienced this procedure? If I don't need to use it at this time, is just the port placed with a cap on it? Thanks so much, fellow PALS:smile: