Old 07-16-2017, 06:07 PM #1 (permalink)
WendyWooG's Avatar
Member
 
Join Date: 2016
City: Stevenage
State: Hertfordshire
Country: Uk
Diagnosed: 07/2016
Interest: I have been diagnosed with ALS.
Posts: 432
WendyWooG is just really niceWendyWooG is just really niceWendyWooG is just really niceWendyWooG is just really nice
WendyWooG WendyWooG is online now
Member
WendyWooG's Avatar
Join Date: 2016
City: Stevenage
State: Hertfordshire
Country: Uk
Diagnosed: 07/2016
Interest: I have been diagnosed with ALS.
Posts: 432
WendyWooG is just really niceWendyWooG is just really niceWendyWooG is just really niceWendyWooG is just really nice
Default In never rainsbut it pours

In need of a vent at the moment. Mostly because I am in the wrong and know it.

I have had a lump on my breast for a few months, my husband found out at the weekend and insisted on seeing the doctor, the doctor was very frank and said she thinks it's probably breast cancer and is trying to get a mammogram and biopsy scheduled quickly. We were all a tad shellshocked for a couple of days.

My close friends and family are a bit Cross with me and I feel guilty for upsetting them, but I kind of didn't want to know. From my point of view it doesn't change anything, the end game is still the same. I am not likely to agree to chemo or radiotherapy as I don't want to deal with side effects when my time is limited anyway.

So I have all the hassle of extra tests that I don't want but am going through because my family want me to. I hate putting them through more, and hate the fact that they want me to do it.

Feeling ratty and tearful not my usual way of dealing with stuff.

Thanks for letting me vent

Wendy xx
WendyWooG is online now   Reply With QuoteReply With Quote
Old 07-16-2017, 06:18 PM #2 (permalink)
Nikki J's Avatar
Extremely Helpful Member
Forum Moderator
 
Join Date: 2012
City: Boston
State: MA
Country: US
Diagnosed: 04/2014
Interest: I have been diagnosed with ALS.
Posts: 5,288
Nikki J has a brilliant futureNikki J has a brilliant futureNikki J has a brilliant futureNikki J has a brilliant futureNikki J has a brilliant futureNikki J has a brilliant futureNikki J has a brilliant futureNikki J has a brilliant futureNikki J has a brilliant futureNikki J has a brilliant futureNikki J has a brilliant future
♥ Nikki J Nikki J is offline
Extremely Helpful Member
Forum Moderator

Nikki J's Avatar
Join Date: 2012
City: Boston
State: MA
Country: US
Diagnosed: 04/2014
Interest: I have been diagnosed with ALS.
Posts: 5,288
Nikki J has a brilliant futureNikki J has a brilliant futureNikki J has a brilliant futureNikki J has a brilliant futureNikki J has a brilliant futureNikki J has a brilliant futureNikki J has a brilliant futureNikki J has a brilliant futureNikki J has a brilliant futureNikki J has a brilliant futureNikki J has a brilliant future
Default Re: In never rainsbut it pours

Wendy I am very sorry. I understand completely I hope if it is cancer the doctors will be supportive of your choice and help your family to accept that you are opting for quality of life.

You are in my thoughts and prayers
Nikki J is offline   Reply With QuoteReply With Quote
Old 07-16-2017, 06:26 PM #3 (permalink)
WendyWooG's Avatar
Member
 
Join Date: 2016
City: Stevenage
State: Hertfordshire
Country: Uk
Diagnosed: 07/2016
Interest: I have been diagnosed with ALS.
Posts: 432
WendyWooG is just really niceWendyWooG is just really niceWendyWooG is just really niceWendyWooG is just really nice
WendyWooG WendyWooG is online now
Member
WendyWooG's Avatar
Join Date: 2016
City: Stevenage
State: Hertfordshire
Country: Uk
Diagnosed: 07/2016
Interest: I have been diagnosed with ALS.
Posts: 432
WendyWooG is just really niceWendyWooG is just really niceWendyWooG is just really niceWendyWooG is just really nice
Default Re: In never rainsbut it pours

Thank you Nikki, it's nice to know someone understands.......
Wx
WendyWooG is online now   Reply With QuoteReply With Quote
Old 07-16-2017, 06:30 PM #4 (permalink)
ShiftKicker's Avatar
Moderator
Forum Moderator
 
Join Date: 2015
City: Vancouver
State: BC
Country: CA
Diagnosed: 06/2015
Interest: I have been diagnosed with UMND/PLS.
Posts: 915
ShiftKicker is a splendid one to beholdShiftKicker is a splendid one to beholdShiftKicker is a splendid one to beholdShiftKicker is a splendid one to beholdShiftKicker is a splendid one to beholdShiftKicker is a splendid one to beholdShiftKicker is a splendid one to behold
♥ ShiftKicker ShiftKicker is offline
Moderator
Forum Moderator

ShiftKicker's Avatar
Join Date: 2015
City: Vancouver
State: BC
Country: CA
Diagnosed: 06/2015
Interest: I have been diagnosed with UMND/PLS.
Posts: 915
ShiftKicker is a splendid one to beholdShiftKicker is a splendid one to beholdShiftKicker is a splendid one to beholdShiftKicker is a splendid one to beholdShiftKicker is a splendid one to beholdShiftKicker is a splendid one to beholdShiftKicker is a splendid one to behold
Default Re: In never rainsbut it pours

Wendy- Sorry you are going through this. If it's not one thing, it's another, eh? Add in a loss of autonomy, where people are insisting (because they love and care about you) that you do things you're not entirely prepared or eager to do and it becomes quite burdensome. Once you get your tests and results, you'll be better able to make an informed decision and weigh the pros and cons of pursuing radical treatment, should you need it.

I wish you the best.

Fiona
ShiftKicker is offline   Reply With QuoteReply With Quote
Old 07-16-2017, 08:57 PM #5 (permalink)
lgelb's Avatar
Extremely Helpful Member

Forum Moderator
 
Join Date: 2009
City: Seattle
State: WA
Country: US
Diagnosed: 09/2009
Interest: I lost a loved one to ALS/MND.
Posts: 4,448
lgelb has a brilliant futurelgelb has a brilliant futurelgelb has a brilliant futurelgelb has a brilliant futurelgelb has a brilliant futurelgelb has a brilliant futurelgelb has a brilliant futurelgelb has a brilliant futurelgelb has a brilliant futurelgelb has a brilliant futurelgelb has a brilliant future
♥ lgelb lgelb is offline
Extremely Helpful Member

Forum Moderator

lgelb's Avatar
Join Date: 2009
City: Seattle
State: WA
Country: US
Diagnosed: 09/2009
Interest: I lost a loved one to ALS/MND.
Posts: 4,448
lgelb has a brilliant futurelgelb has a brilliant futurelgelb has a brilliant futurelgelb has a brilliant futurelgelb has a brilliant futurelgelb has a brilliant futurelgelb has a brilliant futurelgelb has a brilliant futurelgelb has a brilliant futurelgelb has a brilliant futurelgelb has a brilliant future
Default Re: In never rains but it pours

Sorry to hear this news, Wendy. You're in charge, so at whatever point you decline "curative" treatment, you might ask to be referred to the palliative care section at the hospital. There, they are used to hearing about and can help you preserve with maximum comfort the kind of lines you may wish to establish for what you will and will not do relative to your tumor, if indeed that's what it is.

Best,
Laurie
lgelb is offline   Reply With QuoteReply With Quote
Old 07-16-2017, 09:11 PM #6 (permalink)
bkite's Avatar
New Member
 
Join Date: 2016
City: Yakima
State: Washington
Country: US
Diagnosed: 06/2013
Interest: I have been diagnosed with ALS.
Posts: 78
bkite has a spectacular aura aboutbkite has a spectacular aura aboutbkite has a spectacular aura about
bkite bkite is offline
New Member
bkite's Avatar
Join Date: 2016
City: Yakima
State: Washington
Country: US
Diagnosed: 06/2013
Interest: I have been diagnosed with ALS.
Posts: 78
bkite has a spectacular aura aboutbkite has a spectacular aura aboutbkite has a spectacular aura about
Default Re: In never rainsbut it pours

Dear Wendy
I would feel the same in your shoes. Unfortunately your family have some degree of denial of the ALS diagnosis from their reaction to the breast lump. Not that this makes you feel different about investigation of this new problem. Hopefully you can not resent them, but understand them, and help them find peace.
Bruce
bkite is offline   Reply With QuoteReply With Quote
Old 07-17-2017, 02:13 AM #7 (permalink)
WendyWooG's Avatar
Member
 
Join Date: 2016
City: Stevenage
State: Hertfordshire
Country: Uk
Diagnosed: 07/2016
Interest: I have been diagnosed with ALS.
Posts: 432
WendyWooG is just really niceWendyWooG is just really niceWendyWooG is just really niceWendyWooG is just really nice
WendyWooG WendyWooG is online now
Member
WendyWooG's Avatar
Join Date: 2016
City: Stevenage
State: Hertfordshire
Country: Uk
Diagnosed: 07/2016
Interest: I have been diagnosed with ALS.
Posts: 432
WendyWooG is just really niceWendyWooG is just really niceWendyWooG is just really niceWendyWooG is just really nice
Default Re: In never rainsbut it pours

Thank you all for your comments and support, I really appreciate it.

Love
Wendy
WendyWooG is online now   Reply With QuoteReply With Quote
Old 07-17-2017, 02:38 AM #8 (permalink)
affected's Avatar
Extremely Helpful Member
 
Join Date: 2013
City: lala land
State: home
Country: OZ
Diagnosed: 05/2013
Interest: I lost a loved one to ALS/MND.
Posts: 9,096
affected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond repute
affected affected is offline
Extremely Helpful Member
affected's Avatar
Join Date: 2013
City: lala land
State: home
Country: OZ
Diagnosed: 05/2013
Interest: I lost a loved one to ALS/MND.
Posts: 9,096
affected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond repute
Default Re: In never rainsbut it pours

Hugs Wendy.

As a past CALS I get what you are saying and I feel I would be the same. But regardless I'm so strongly pro-choice. Your body - your choice. I do believe there is a layer where it's both partners that should discuss all aspects, and then family should discuss. But if this had been Chris I would have been supporting whatever he chose.

I can understand not bringing up the lump.

We get it, and it sucks, so you can only choose whatever is for you the better of a bad bunch of choices.
affected is offline   Reply With QuoteReply With Quote
Old 07-17-2017, 06:53 AM #9 (permalink)
chally's Avatar
Senior Member
 
Join Date: 2015
City: renick
State: wv.
Country: US
Diagnosed: 02/2015
Interest: I have been diagnosed with ALS.
Posts: 842
chally is a glorious beacon of lightchally is a glorious beacon of lightchally is a glorious beacon of lightchally is a glorious beacon of lightchally is a glorious beacon of light
chally chally is offline
Senior Member
chally's Avatar
Join Date: 2015
City: renick
State: wv.
Country: US
Diagnosed: 02/2015
Interest: I have been diagnosed with ALS.
Posts: 842
chally is a glorious beacon of lightchally is a glorious beacon of lightchally is a glorious beacon of lightchally is a glorious beacon of lightchally is a glorious beacon of light
Default Re: In never rainsbut it pours

Sending you Wendy all the love and support. One day at a time.
Love ya
Chally
chally is offline   Reply With QuoteReply With Quote
Old 07-17-2017, 07:30 AM #10 (permalink)
WendyWooG's Avatar
Member
 
Join Date: 2016
City: Stevenage
State: Hertfordshire
Country: Uk
Diagnosed: 07/2016
Interest: I have been diagnosed with ALS.
Posts: 432
WendyWooG is just really niceWendyWooG is just really niceWendyWooG is just really niceWendyWooG is just really nice
WendyWooG WendyWooG is online now
Member
WendyWooG's Avatar
Join Date: 2016
City: Stevenage
State: Hertfordshire
Country: Uk
Diagnosed: 07/2016
Interest: I have been diagnosed with ALS.
Posts: 432
WendyWooG is just really niceWendyWooG is just really niceWendyWooG is just really niceWendyWooG is just really nice
Default Re: In never rainsbut it pours

Thanks Tillie and Chally

Yep one day at a time x
WendyWooG is online now   Reply With QuoteReply With Quote
Old 07-17-2017, 08:49 AM #11 (permalink)
Firefighter58's Avatar
Member
 
Join Date: 2016
City: Oakville
State: Ontario
Country: CA
Diagnosed: 05/2014
Interest: I have been diagnosed with ALS.
Posts: 334
Firefighter58 is a jewel in the roughFirefighter58 is a jewel in the roughFirefighter58 is a jewel in the roughFirefighter58 is a jewel in the rough
Firefighter58 Firefighter58 is offline
Member
Firefighter58's Avatar
Join Date: 2016
City: Oakville
State: Ontario
Country: CA
Diagnosed: 05/2014
Interest: I have been diagnosed with ALS.
Posts: 334
Firefighter58 is a jewel in the roughFirefighter58 is a jewel in the roughFirefighter58 is a jewel in the roughFirefighter58 is a jewel in the rough
Default Re: In never rainsbut it pours

Wendy, soldier on......soldier on and keep fighting.
All my wishes
Al
Firefighter58 is offline   Reply With QuoteReply With Quote
Old 07-17-2017, 12:21 PM #12 (permalink)
Member
 
Join Date: 2014
City: Austin
State: Texas
Country: US
Diagnosed: 11/2014
Interest: I have been diagnosed with ALS.
Posts: 310
mpnatx is on a distinguished road
mpnatx mpnatx is offline
Member
Join Date: 2014
City: Austin
State: Texas
Country: US
Diagnosed: 11/2014
Interest: I have been diagnosed with ALS.
Posts: 310
mpnatx is on a distinguished road
Default Re: In never rainsbut it pours

Wendy,
Yep, it's always something. I went through 37 radiation treatments for prostate cancer after I was diagnosed with ALS.
I was tasked with the decision to go through radiation or just let everything run it's course. The urologist said I would have about eight years before the cancer got me. It was a race!
I chose radiation because it was easy and painless.
The worst side effect I had was fatigue. But I was already fatigued so it didn't matter!
And, no more cancer!
Good luck Wendy!
mpnatx is offline   Reply With QuoteReply With Quote
Thanks from
WendyWooG (07-18-2017)
Old 07-17-2017, 01:36 PM #13 (permalink)
Jrzygrl's Avatar
New Member
 
Join Date: 2017
City: South
State: New Jersey
Country: US
Diagnosed: 08/2014
Interest: I am a caregiver for someone with ALS/MND.
Posts: 93
Jrzygrl is on a very distinguished road
Jrzygrl Jrzygrl is offline
New Member
Jrzygrl's Avatar
Join Date: 2017
City: South
State: New Jersey
Country: US
Diagnosed: 08/2014
Interest: I am a caregiver for someone with ALS/MND.
Posts: 93
Jrzygrl is on a very distinguished road
Default Re: In never rainsbut it pours

Sending prayers and hugs, Wendy. I hope that you find peace with whatever decision you make.
Jrzygrl is offline   Reply With QuoteReply With Quote
Old 07-17-2017, 02:49 PM #14 (permalink)
Senior Member
 
Join Date: 2014
City: Tucson
State: AZ
Country: US
Diagnosed: 12/2013
Interest: I have been diagnosed with ALS.
Posts: 672
azgirl is just really niceazgirl is just really niceazgirl is just really niceazgirl is just really nice
azgirl azgirl is offline
Senior Member
Join Date: 2014
City: Tucson
State: AZ
Country: US
Diagnosed: 12/2013
Interest: I have been diagnosed with ALS.
Posts: 672
azgirl is just really niceazgirl is just really niceazgirl is just really niceazgirl is just really nice
Default Re: In never rainsbut it pours

Totally your call Wendy. For the record, I would not treat it either. I want to scream for yo, NOT FAIR a hundred times.

Love and hugs to you my fellow warrior.
azgirl is offline   Reply With QuoteReply With Quote
Old 07-17-2017, 04:35 PM #15 (permalink)
Member
 
Join Date: 2011
City: Sandy Springs
State: Georgia
Country: US
Diagnosed: 10/2010
Interest: I have been diagnosed with ALS.
Posts: 468
frankb is a jewel in the roughfrankb is a jewel in the roughfrankb is a jewel in the roughfrankb is a jewel in the rough
frankb frankb is online now
Member
Join Date: 2011
City: Sandy Springs
State: Georgia
Country: US
Diagnosed: 10/2010
Interest: I have been diagnosed with ALS.
Posts: 468
frankb is a jewel in the roughfrankb is a jewel in the roughfrankb is a jewel in the roughfrankb is a jewel in the rough
Default Re: In never rainsbut it pours

So Sorry, Wendt, You are in our thoughts, Hugs, Hugs, Hugs.
frankb is online now   Reply With QuoteReply With Quote
Reply

Tags
family, lump, tests, vent, wrong


Currently Active Users Viewing This Thread: 1 (0 members and 1 guests)
 
Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Trackbacks are On
Pingbacks are On
Refbacks are Off


All times are GMT -5. The time now is 01:32 PM.

 

Who we are

"We are a volunteer-driven online community that originated in 2003. We are a resource for anyone affected by ALS and MND. We are a community of like-minded and compassionate individuals. Together we are the ALS Forum and together we build this online resource and online community."

 

Want to help?

Have you found our website helpful? Do you enjoy having a place to talk to people that are knowledgeable about ALS and MND? If you have found it helpful to chat with people at different stages of the ALS/MND journey we encourage you to get involved.

Copyright © 2016