Old 04-07-2017, 03:56 PM #1 (permalink)
Kristina1's Avatar
Member
 
Join Date: 2017
City: Grafton
State: MA
Country: US
Diagnosed: 03/2017
Interest: I have been diagnosed with ALS.
Posts: 451
Kristina1 is a jewel in the roughKristina1 is a jewel in the roughKristina1 is a jewel in the roughKristina1 is a jewel in the rough
Kristina1 Kristina1 is offline
Member
Kristina1's Avatar
Join Date: 2017
City: Grafton
State: MA
Country: US
Diagnosed: 03/2017
Interest: I have been diagnosed with ALS.
Posts: 451
Kristina1 is a jewel in the roughKristina1 is a jewel in the roughKristina1 is a jewel in the roughKristina1 is a jewel in the rough
Default Lasik vision correction

I have REALLY bad eyesight, as in one unit away from legally blind. With my hand weakness and spasticity it is hard to put my contact lenses in so a few weeks ago I went in for a consult for Lasik surgery. I think this will make my life easier if it works out-- just be one less thing to deal with.

Surgery is next week! I searched the forum and did see an old post where a few people mentioned they had done this and seemed to have had good results. The doctor said they've never had an ALS patient before but that it should not impact the laser surgery at all.

Anyone else done this? I'm cautioiusly optimistic.
Kristina1 is offline  
Old 04-07-2017, 05:00 PM #2 (permalink)
KimT's Avatar
Extremely Helpful Member
 
Join Date: 2014
City: The Beach
State: South
Country: US
Diagnosed: 08/2015
Interest: I have been diagnosed with ALS.
Posts: 2,897
KimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond repute
KimT KimT is offline
Extremely Helpful Member

KimT's Avatar
Join Date: 2014
City: The Beach
State: South
Country: US
Diagnosed: 08/2015
Interest: I have been diagnosed with ALS.
Posts: 2,897
KimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond repute
Default Re: Lasik vision correction

I had lasik in 2001. I was in and out in 20 minutes and the procedure itself took about 30 seconds in each eye. My eyes were gritty and sore for about 4 hours after but I could immediately see so much better.

It regressed a little after about 5 years but it made such a positive difference in my life I'd do it again in a minute.

You need someone to drive you and you need to wear sunglasses on the way home. When you get home, take a nap.

Seeing better will help your balance.

Best wishes!
KimT is offline  
Thanks from
Kristina1 (04-07-2017)
Old 04-07-2017, 06:11 PM #3 (permalink)
Kristina1's Avatar
Member
 
Join Date: 2017
City: Grafton
State: MA
Country: US
Diagnosed: 03/2017
Interest: I have been diagnosed with ALS.
Posts: 451
Kristina1 is a jewel in the roughKristina1 is a jewel in the roughKristina1 is a jewel in the roughKristina1 is a jewel in the rough
Kristina1 Kristina1 is offline
Member
Kristina1's Avatar
Join Date: 2017
City: Grafton
State: MA
Country: US
Diagnosed: 03/2017
Interest: I have been diagnosed with ALS.
Posts: 451
Kristina1 is a jewel in the roughKristina1 is a jewel in the roughKristina1 is a jewel in the roughKristina1 is a jewel in the rough
Default Re: Lasik vision correction

Thanks Kim! That's reassuring to hear, thanks for sharing! They told me about the sunglasses, drops, someone to drive me home etc today when discussing post-op instructions. Fingers crossed all goes well!
Kristina1 is offline  
Old 04-07-2017, 06:19 PM #4 (permalink)
KimT's Avatar
Extremely Helpful Member
 
Join Date: 2014
City: The Beach
State: South
Country: US
Diagnosed: 08/2015
Interest: I have been diagnosed with ALS.
Posts: 2,897
KimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond repute
KimT KimT is offline
Extremely Helpful Member

KimT's Avatar
Join Date: 2014
City: The Beach
State: South
Country: US
Diagnosed: 08/2015
Interest: I have been diagnosed with ALS.
Posts: 2,897
KimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond repute
Default Re: Lasik vision correction

Kristina,
I actually drove myself home. The office was only a mile away and I was brave back then.....and healthy. You will do fine. All they do in numb your eyeballs with some drops. I was so surprised it took so little time. I went from 20/200 to 20/25.
KimT is offline  
Thanks from
Kristina1 (04-07-2017)
Old 04-07-2017, 06:27 PM #5 (permalink)
ShiftKicker's Avatar
Moderator
Forum Moderator
 
Join Date: 2015
City: Vancouver
State: BC
Country: CA
Diagnosed: 06/2015
Interest: I have been diagnosed with UMND/PLS.
Posts: 1,727
ShiftKicker has a reputation beyond reputeShiftKicker has a reputation beyond reputeShiftKicker has a reputation beyond reputeShiftKicker has a reputation beyond reputeShiftKicker has a reputation beyond reputeShiftKicker has a reputation beyond reputeShiftKicker has a reputation beyond reputeShiftKicker has a reputation beyond reputeShiftKicker has a reputation beyond reputeShiftKicker has a reputation beyond reputeShiftKicker has a reputation beyond repute
♥ ShiftKicker ShiftKicker is offline
Moderator
Forum Moderator

ShiftKicker's Avatar
Join Date: 2015
City: Vancouver
State: BC
Country: CA
Diagnosed: 06/2015
Interest: I have been diagnosed with UMND/PLS.
Posts: 1,727
ShiftKicker has a reputation beyond reputeShiftKicker has a reputation beyond reputeShiftKicker has a reputation beyond reputeShiftKicker has a reputation beyond reputeShiftKicker has a reputation beyond reputeShiftKicker has a reputation beyond reputeShiftKicker has a reputation beyond reputeShiftKicker has a reputation beyond reputeShiftKicker has a reputation beyond reputeShiftKicker has a reputation beyond reputeShiftKicker has a reputation beyond repute
Default Re: Lasik vision correction

My mother had it two years ago and it changed her life. It's such a grand thing to say, but absolutely true in her case. She has worn "coke bottle" glasses since she was 2 years old. Her eyesight started to decline quite seriously about 8 years ago. She got Lasik surgery as a last ditch attempt at keeping even some of her eyesight. She walked out of the surgery without needing to wear glasses at all and has kept her improved eyesight without any sort of degradation since. She also had the amazing fortune to discover vibrant colours again as well. It was something completely unexpected- she had no idea there had been a reduction in her ability to see colours till she walked out of the office and saw some blossom trees in their full and vibrantly pink glory.

She does have some issues with night vision, which I gather is common and will not drive at night if the roads are wet because of the reflections.

Lasik surgery was life changing for her. I wish you the same joy she had when she was able to see without looking through glasses and realized how clourful the world really is.
ShiftKicker is offline  
Thanks from
Kristina1 (04-07-2017)
Old 04-07-2017, 07:08 PM #6 (permalink)
lgelb's Avatar
Extremely Helpful Member

Forum Moderator
 
Join Date: 2009
City: Seattle
State: WA
Country: US
Diagnosed: 09/2009
Interest: I lost a loved one to ALS/MND.
Posts: 6,316
lgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond repute
♥ lgelb lgelb is offline
Extremely Helpful Member

Forum Moderator

lgelb's Avatar
Join Date: 2009
City: Seattle
State: WA
Country: US
Diagnosed: 09/2009
Interest: I lost a loved one to ALS/MND.
Posts: 6,316
lgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond repute
Default Re: Lasik vision correction

Kristina, as with any procedure, the main thing is to get a surgeon with good credentials and experience. ALS should not be a factor.

Best,
Laurie
lgelb is offline  
Thanks from
Kristina1 (04-07-2017)
Old 04-07-2017, 07:42 PM #7 (permalink)
Kristina1's Avatar
Member
 
Join Date: 2017
City: Grafton
State: MA
Country: US
Diagnosed: 03/2017
Interest: I have been diagnosed with ALS.
Posts: 451
Kristina1 is a jewel in the roughKristina1 is a jewel in the roughKristina1 is a jewel in the roughKristina1 is a jewel in the rough
Kristina1 Kristina1 is offline
Member
Kristina1's Avatar
Join Date: 2017
City: Grafton
State: MA
Country: US
Diagnosed: 03/2017
Interest: I have been diagnosed with ALS.
Posts: 451
Kristina1 is a jewel in the roughKristina1 is a jewel in the roughKristina1 is a jewel in the roughKristina1 is a jewel in the rough
Default Re: Lasik vision correction

Quote:
Originally Posted by ShiftKicker View Post
My mother had it two years ago and it changed her life. It's such a grand thing to say, but absolutely true in her case. She has worn "coke bottle" glasses since she was 2 years old. Her eyesight started to decline quite seriously about 8 years ago. She got Lasik surgery as a last ditch attempt at keeping even some of her eyesight. She walked out of the surgery without needing to wear glasses at all and has kept her improved eyesight without any sort of degradation since. She also had the amazing fortune to discover vibrant colours again as well. It was something completely unexpected- she had no idea there had been a reduction in her ability to see colours till she walked out of the office and saw some blossom trees in their full and vibrantly pink glory.

She does have some issues with night vision, which I gather is common and will not drive at night if the roads are wet because of the reflections.

Lasik surgery was life changing for her. I wish you the same joy she had when she was able to see without looking through glasses and realized how clourful the world really is.
Wow, thanks for sharing. The doctor told me similar things, he basically said that people with high prescriptions like mine usually cry when they first sit up after the procedure and can truly see for the first time. I've been in glasses (and later contacts) since I was 5 so I really have no memory of a time when I could see. It's hard for me to even imagine what that will be like, but I'm hopeful and excited!
Kristina1 is offline  
Old 04-07-2017, 08:02 PM #8 (permalink)
Very Helpful Member
 
Join Date: 2016
City: Cleveland
State: Oklahoma
Country: US
Diagnosed: 10/2015
Interest: I lost a loved one to ALS/MND.
Posts: 1,420
soonerwife has much to be proud ofsoonerwife has much to be proud ofsoonerwife has much to be proud ofsoonerwife has much to be proud ofsoonerwife has much to be proud ofsoonerwife has much to be proud ofsoonerwife has much to be proud ofsoonerwife has much to be proud of
soonerwife soonerwife is offline
Very Helpful Member
Join Date: 2016
City: Cleveland
State: Oklahoma
Country: US
Diagnosed: 10/2015
Interest: I lost a loved one to ALS/MND.
Posts: 1,420
soonerwife has much to be proud ofsoonerwife has much to be proud ofsoonerwife has much to be proud ofsoonerwife has much to be proud ofsoonerwife has much to be proud ofsoonerwife has much to be proud ofsoonerwife has much to be proud ofsoonerwife has much to be proud of
Default Re: Lasik vision correction

I had lasik surgery close to 15 years ago. I had always worn glasses or contacts since I was probably 10. I had 20/15 vision up until I turned 43, then I needed reading glasses only. I have never regretted it. I completely agree with Laurie. A reputable dr goes a long ways. Good luck!
soonerwife is offline  
Thanks from
Kristina1 (04-08-2017)
Old 04-09-2017, 09:10 AM #9 (permalink)
Member
 
Join Date: 2012
City: thornton
State: co
Country: US
Diagnosed: 09/2012
Interest: I have been diagnosed with ALS.
Posts: 420
patrick123 has a spectacular aura aboutpatrick123 has a spectacular aura about
patrick123 patrick123 is offline
Member
Join Date: 2012
City: thornton
State: co
Country: US
Diagnosed: 09/2012
Interest: I have been diagnosed with ALS.
Posts: 420
patrick123 has a spectacular aura aboutpatrick123 has a spectacular aura about
Default Re: Lasik vision correction

I would do it in a snap. But my eye is so bad, the cost is around $4000.00 I dont have that kind money.
Patrick
patrick123 is offline  
Thanks from
Kristina1 (04-09-2017)
Old 04-09-2017, 12:51 PM #10 (permalink)
Kristina1's Avatar
Member
 
Join Date: 2017
City: Grafton
State: MA
Country: US
Diagnosed: 03/2017
Interest: I have been diagnosed with ALS.
Posts: 451
Kristina1 is a jewel in the roughKristina1 is a jewel in the roughKristina1 is a jewel in the roughKristina1 is a jewel in the rough
Kristina1 Kristina1 is offline
Member
Kristina1's Avatar
Join Date: 2017
City: Grafton
State: MA
Country: US
Diagnosed: 03/2017
Interest: I have been diagnosed with ALS.
Posts: 451
Kristina1 is a jewel in the roughKristina1 is a jewel in the roughKristina1 is a jewel in the roughKristina1 is a jewel in the rough
Default Re: Lasik vision correction

Quote:
Originally Posted by patrick123 View Post
I would do it in a snap. But my eye is so bad, the cost is around $4000.00 I dont have that kind money.
Patrick
Yes, it is costing us $5000. My husband is using his annual bonus to pay for it. Initially I told him isn't it a waste of money if I'm just going to die in a few years anyway? And he said never to talk like that. He said it's absolutely worth it if it brings me an ounce of additional ease given the situation. I still feel uncomfortable having us spend this much on me, but I've come to see his view on it. If our roles were reversed I would absolutely spend it on his comfort/quality of life with no qualms.
Kristina1 is offline  
Old 04-14-2017, 01:40 PM #11 (permalink)
Kristina1's Avatar
Member
 
Join Date: 2017
City: Grafton
State: MA
Country: US
Diagnosed: 03/2017
Interest: I have been diagnosed with ALS.
Posts: 451
Kristina1 is a jewel in the roughKristina1 is a jewel in the roughKristina1 is a jewel in the roughKristina1 is a jewel in the rough
Kristina1 Kristina1 is offline
Member
Kristina1's Avatar
Join Date: 2017
City: Grafton
State: MA
Country: US
Diagnosed: 03/2017
Interest: I have been diagnosed with ALS.
Posts: 451
Kristina1 is a jewel in the roughKristina1 is a jewel in the roughKristina1 is a jewel in the roughKristina1 is a jewel in the rough
Default Re: Lasik vision correction

Lasik procedure was yesterday. It went really well! They gave me a xanax 20 min before to help me relax. It also had the side-effect of increasing my slurred speech a LOT so I had trouble speaking (more trouble than normal) for about 4 hours or so. I wasn't expecting that but I guess it makes sense if it was relaxing my muscles and they are already sluggish.

Woke up this morning with what feels like perfect vision, though they said it will continue to improve! Feeling really glad I went forward with this.
Kristina1 is offline  
The Following 5 Users Say Thank You to Kristina1 For This Useful Post:
Angiegal (04-14-2017), DaChief (04-17-2017), frankb (04-21-2017), KimT (04-14-2017), ShiftKicker (04-14-2017)
Old 04-14-2017, 01:43 PM #12 (permalink)
Nikki J's Avatar
Extremely Helpful Member
Forum Moderator
 
Join Date: 2012
City: Boston
State: MA
Country: US
Diagnosed: 04/2014
Interest: I have been diagnosed with ALS.
Posts: 6,538
Nikki J has a reputation beyond reputeNikki J has a reputation beyond reputeNikki J has a reputation beyond reputeNikki J has a reputation beyond reputeNikki J has a reputation beyond reputeNikki J has a reputation beyond reputeNikki J has a reputation beyond reputeNikki J has a reputation beyond reputeNikki J has a reputation beyond reputeNikki J has a reputation beyond reputeNikki J has a reputation beyond repute
Nikki J Nikki J is offline
Extremely Helpful Member
Forum Moderator

Nikki J's Avatar
Join Date: 2012
City: Boston
State: MA
Country: US
Diagnosed: 04/2014
Interest: I have been diagnosed with ALS.
Posts: 6,538
Nikki J has a reputation beyond reputeNikki J has a reputation beyond reputeNikki J has a reputation beyond reputeNikki J has a reputation beyond reputeNikki J has a reputation beyond reputeNikki J has a reputation beyond reputeNikki J has a reputation beyond reputeNikki J has a reputation beyond reputeNikki J has a reputation beyond reputeNikki J has a reputation beyond reputeNikki J has a reputation beyond repute
Default Re: Lasik vision correction

So happy for you!
Nikki J is offline  
Thanks from
Kristina1 (04-14-2017)
Old 04-14-2017, 02:40 PM #13 (permalink)
ShiftKicker's Avatar
Moderator
Forum Moderator
 
Join Date: 2015
City: Vancouver
State: BC
Country: CA
Diagnosed: 06/2015
Interest: I have been diagnosed with UMND/PLS.
Posts: 1,727
ShiftKicker has a reputation beyond reputeShiftKicker has a reputation beyond reputeShiftKicker has a reputation beyond reputeShiftKicker has a reputation beyond reputeShiftKicker has a reputation beyond reputeShiftKicker has a reputation beyond reputeShiftKicker has a reputation beyond reputeShiftKicker has a reputation beyond reputeShiftKicker has a reputation beyond reputeShiftKicker has a reputation beyond reputeShiftKicker has a reputation beyond repute
♥ ShiftKicker ShiftKicker is offline
Moderator
Forum Moderator

ShiftKicker's Avatar
Join Date: 2015
City: Vancouver
State: BC
Country: CA
Diagnosed: 06/2015
Interest: I have been diagnosed with UMND/PLS.
Posts: 1,727
ShiftKicker has a reputation beyond reputeShiftKicker has a reputation beyond reputeShiftKicker has a reputation beyond reputeShiftKicker has a reputation beyond reputeShiftKicker has a reputation beyond reputeShiftKicker has a reputation beyond reputeShiftKicker has a reputation beyond reputeShiftKicker has a reputation beyond reputeShiftKicker has a reputation beyond reputeShiftKicker has a reputation beyond reputeShiftKicker has a reputation beyond repute
Default Re: Lasik vision correction

Thanks so much for filling us in. I am SO glad it worked so well for you.
ShiftKicker is offline  
Thanks from
Kristina1 (04-14-2017)
Old 04-14-2017, 04:23 PM #14 (permalink)
affected's Avatar
Extremely Helpful Member
 
Join Date: 2013
City: lala land
State: home
Country: OZ
Diagnosed: 05/2013
Interest: I lost a loved one to ALS/MND.
Posts: 10,966
affected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond repute
affected affected is offline
Extremely Helpful Member
affected's Avatar
Join Date: 2013
City: lala land
State: home
Country: OZ
Diagnosed: 05/2013
Interest: I lost a loved one to ALS/MND.
Posts: 10,966
affected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond repute
Default Re: Lasik vision correction

What fantastic news! I'm so glad you did this

Definitely the relaxing affects speech - my Chris was bulbar onset and he had a lot of UMN involvement so with the slurred speech he also had a lot of jaw clenching, tension, clonus and spasticity.

Before diagnosis we were thinking it was TMJ so I did some massage for this and the tension did melt to a large degree and felt great but his speech immediately was so bad I cried and cried being sure I had broken him!

It sure made sense later as I learned about this disease, and of course his speech was back to just mildly slurred the next day.
affected is offline  
Thanks from
Kristina1 (04-14-2017)
Old 04-14-2017, 06:02 PM #15 (permalink)
Kristina1's Avatar
Member
 
Join Date: 2017
City: Grafton
State: MA
Country: US
Diagnosed: 03/2017
Interest: I have been diagnosed with ALS.
Posts: 451
Kristina1 is a jewel in the roughKristina1 is a jewel in the roughKristina1 is a jewel in the roughKristina1 is a jewel in the rough
Kristina1 Kristina1 is offline
Member
Kristina1's Avatar
Join Date: 2017
City: Grafton
State: MA
Country: US
Diagnosed: 03/2017
Interest: I have been diagnosed with ALS.
Posts: 451
Kristina1 is a jewel in the roughKristina1 is a jewel in the roughKristina1 is a jewel in the roughKristina1 is a jewel in the rough
Default Re: Lasik vision correction

Aww, Tillie, hugs!
Kristina1 is offline  
Closed Thread

Tags
als, life, surgery, vision, vision correction, weakness


Currently Active Users Viewing This Thread: 1 (0 members and 1 guests)
 
Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Trackbacks are On
Pingbacks are On
Refbacks are Off

Similar Threads
Thread Thread Starter Forum Replies Last Post
Complications for LASIK surgery? LittleKnight General Discussion About ALS/MND 4 11-28-2015 08:32 AM
Vision questions Port General Discussion About PLS 5 01-21-2014 02:01 PM
Weak eye vision: need help sweet28 General Discussion About ALS/MND 1 11-17-2011 11:17 AM
ALS Vision changes r_ruttle@shaw.ca General Discussion About ALS/MND 1 05-19-2009 12:12 PM
Lasik, glasses, & BiPap MarciaA People With ALS - "PALS" 4 07-24-2006 05:48 PM


All times are GMT -5. The time now is 10:59 AM.

 

Who we are

"We are a volunteer-driven online community that originated in 2003. We are a resource for anyone affected by ALS and MND. We are a community of like-minded and compassionate individuals. Together we are the ALS Forum and together we build this online resource and online community."

 

Want to help?

Have you found our website helpful? Do you enjoy having a place to talk to people that are knowledgeable about ALS and MND? If you have found it helpful to chat with people at different stages of the ALS/MND journey we encourage you to get involved.

Copyright © 2016