Old 07-05-2017, 11:05 PM #256 (permalink)
DaChief's Avatar
Member
 
Join Date: 2016
City: West Melbourne
State: Florida
Country: US
Diagnosed: 12/2016
Interest: I have been diagnosed with ALS.
Posts: 191
DaChief is on a very distinguished roadDaChief is on a very distinguished road
DaChief DaChief is offline
Member
DaChief's Avatar
Join Date: 2016
City: West Melbourne
State: Florida
Country: US
Diagnosed: 12/2016
Interest: I have been diagnosed with ALS.
Posts: 191
DaChief is on a very distinguished roadDaChief is on a very distinguished road
Default re: PALS roll call Wednesdays (or whenever) PALS ONLY PLEASE

Quote:
Originally Posted by frankb View Post
bummer. fell and broke wrist, following day wifey - and caregiver - fell breaking fibia a tibia. will be off forum for a few weeks. bummer.
Sorry to hear that Frank! Hope you both mend quickly!
DaChief is offline   Reply With QuoteReply With Quote
Old 07-06-2017, 03:03 AM #257 (permalink)
Ed340hp's Avatar
New Member
 
Join Date: 2015
City: Long Beach
State: California
Country: US
Diagnosed: 05/2015
Interest: I have been diagnosed with ALS.
Posts: 84
Ed340hp is on a very distinguished roadEd340hp is on a very distinguished road
Ed340hp Ed340hp is offline
New Member
Ed340hp's Avatar
Join Date: 2015
City: Long Beach
State: California
Country: US
Diagnosed: 05/2015
Interest: I have been diagnosed with ALS.
Posts: 84
Ed340hp is on a very distinguished roadEd340hp is on a very distinguished road
Default re: PALS roll call Wednesdays (or whenever) PALS ONLY PLEASE

Checking in here.
We have a long family trip starting tomorrow.
Last minute dash tomorrow.
Good luck everyone.
Ed340hp is offline   Reply With QuoteReply With Quote
Old 07-06-2017, 06:35 AM #258 (permalink)
WendyWooG's Avatar
Senior Member
 
Join Date: 2016
City: Stevenage
State: Hertfordshire
Country: Uk
Diagnosed: 07/2016
Interest: I have been diagnosed with ALS.
Posts: 518
WendyWooG is a glorious beacon of lightWendyWooG is a glorious beacon of lightWendyWooG is a glorious beacon of lightWendyWooG is a glorious beacon of lightWendyWooG is a glorious beacon of lightWendyWooG is a glorious beacon of light
WendyWooG WendyWooG is offline
Senior Member
WendyWooG's Avatar
Join Date: 2016
City: Stevenage
State: Hertfordshire
Country: Uk
Diagnosed: 07/2016
Interest: I have been diagnosed with ALS.
Posts: 518
WendyWooG is a glorious beacon of lightWendyWooG is a glorious beacon of lightWendyWooG is a glorious beacon of lightWendyWooG is a glorious beacon of lightWendyWooG is a glorious beacon of lightWendyWooG is a glorious beacon of light
Default re: PALS roll call Wednesdays (or whenever) PALS ONLY PLEASE

Oh No Frankb
Wishing you both a speedy recovery
Wendy xx
WendyWooG is offline   Reply With QuoteReply With Quote
Old 07-06-2017, 07:29 AM #259 (permalink)
chally's Avatar
Very Helpful Member
 
Join Date: 2015
City: renick
State: wv.
Country: US
Diagnosed: 02/2015
Interest: I have been diagnosed with ALS.
Posts: 1,198
chally has much to be proud ofchally has much to be proud ofchally has much to be proud ofchally has much to be proud ofchally has much to be proud ofchally has much to be proud ofchally has much to be proud ofchally has much to be proud ofchally has much to be proud ofchally has much to be proud of
chally chally is offline
Very Helpful Member
chally's Avatar
Join Date: 2015
City: renick
State: wv.
Country: US
Diagnosed: 02/2015
Interest: I have been diagnosed with ALS.
Posts: 1,198
chally has much to be proud ofchally has much to be proud ofchally has much to be proud ofchally has much to be proud ofchally has much to be proud ofchally has much to be proud ofchally has much to be proud ofchally has much to be proud ofchally has much to be proud ofchally has much to be proud of
Default re: PALS roll call Wednesdays (or whenever) PALS ONLY PLEASE

Hope ya both heal quickly Frank!
Summertime feels good here in mts of WV.
Wishing all the best!
chally is offline   Reply With QuoteReply With Quote
Old 07-06-2017, 09:43 PM #260 (permalink)
swalker's Avatar
Senior Member
 
Join Date: 2014
City: Vail
State: Colorado
Country: US
Diagnosed: 07/2014
Interest: I have been diagnosed with another Motor Neuron Disease.
Posts: 970
swalker is a splendid one to beholdswalker is a splendid one to beholdswalker is a splendid one to beholdswalker is a splendid one to beholdswalker is a splendid one to beholdswalker is a splendid one to beholdswalker is a splendid one to beholdswalker is a splendid one to behold
swalker swalker is online now
Senior Member
swalker's Avatar
Join Date: 2014
City: Vail
State: Colorado
Country: US
Diagnosed: 07/2014
Interest: I have been diagnosed with another Motor Neuron Disease.
Posts: 970
swalker is a splendid one to beholdswalker is a splendid one to beholdswalker is a splendid one to beholdswalker is a splendid one to beholdswalker is a splendid one to beholdswalker is a splendid one to beholdswalker is a splendid one to beholdswalker is a splendid one to behold
Default re: PALS roll call Wednesdays (or whenever) PALS ONLY PLEASE

Frank, I am so sorry to hear of your break and your wife's breaks.

How is your wrist doing? Did they simply cast it or was there surgery involved to fix things?

And, perhaps more importantly, how is your wife doing?

Steve
swalker is online now   Reply With QuoteReply With Quote
Old 07-10-2017, 07:15 AM #261 (permalink)
raabc's Avatar
New Member (Say Hi)
 
Join Date: 2013
City: Potomac
State: MD
Country: US
Diagnosed: 07/2013
Interest: I have been diagnosed with ALS.
Posts: 5
raabc is on a distinguished road
raabc raabc is offline
New Member (Say Hi)
raabc's Avatar
Join Date: 2013
City: Potomac
State: MD
Country: US
Diagnosed: 07/2013
Interest: I have been diagnosed with ALS.
Posts: 5
raabc is on a distinguished road
Default re: PALS roll call Wednesdays (or whenever) PALS ONLY PLEASE

checking In! It's been a rough week. But by the grace of G-d, I made it thru! I don't know exactly what I had but every time they would put anything in my peg tube I would start to feel really nauseous & just awful & threw up. But luckily my girl was next to me so when I started getting sick she would turn my head so that I wouldn't aspirate on what was coming up. So especially glad to be checking in on here bcuz I wasn't sure I would make it but I did! so Kia Kaha everyone! (Kia Kaha mean Stay Strong)
raabc is offline   Reply With QuoteReply With Quote
Old 07-10-2017, 01:13 PM #262 (permalink)
kellykago's Avatar
New Member
 
Join Date: 2012
City: Fairfield
State: CA
Country: US
Diagnosed: 12/2016
Interest: I have been diagnosed with ALS.
Posts: 62
kellykago is on a distinguished road
kellykago kellykago is offline
New Member
kellykago's Avatar
Join Date: 2012
City: Fairfield
State: CA
Country: US
Diagnosed: 12/2016
Interest: I have been diagnosed with ALS.
Posts: 62
kellykago is on a distinguished road
Default re: PALS roll call Wednesdays (or whenever) PALS ONLY PLEASE

Still here and going strong. Progression still slow.. Have second clinic appt on the 20th
kellykago is offline   Reply With QuoteReply With Quote
Old 07-12-2017, 10:00 AM #263 (permalink)
Firefighter58's Avatar
Member
 
Join Date: 2016
City: Oakville
State: Ontario
Country: CA
Diagnosed: 05/2014
Interest: I have been diagnosed with ALS.
Posts: 468
Firefighter58 is a glorious beacon of lightFirefighter58 is a glorious beacon of lightFirefighter58 is a glorious beacon of lightFirefighter58 is a glorious beacon of lightFirefighter58 is a glorious beacon of light
Firefighter58 Firefighter58 is offline
Member
Firefighter58's Avatar
Join Date: 2016
City: Oakville
State: Ontario
Country: CA
Diagnosed: 05/2014
Interest: I have been diagnosed with ALS.
Posts: 468
Firefighter58 is a glorious beacon of lightFirefighter58 is a glorious beacon of lightFirefighter58 is a glorious beacon of lightFirefighter58 is a glorious beacon of lightFirefighter58 is a glorious beacon of light
Default Re: CALS Roll Call Continued

A beautiful day here, just got home from the cottage where we have a fellow just finishing building 40 foot ramp at the front door so I will not have to climb the 3 stairs that are there, when I built the place I didn't realize I would need a ramp or I would not have built it so high.
Al
Firefighter58 is offline   Reply With QuoteReply With Quote
Old 07-12-2017, 07:10 PM #264 (permalink)
KimT's Avatar
Extremely Helpful Member
 
Join Date: 2014
City: The Beach
State: South
Country: US
Diagnosed: 08/2015
Interest: I have been diagnosed with ALS.
Posts: 2,939
KimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond repute
KimT KimT is online now
Extremely Helpful Member

KimT's Avatar
Join Date: 2014
City: The Beach
State: South
Country: US
Diagnosed: 08/2015
Interest: I have been diagnosed with ALS.
Posts: 2,939
KimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond repute
Default re: PALS roll call Wednesdays (or whenever) PALS ONLY PLEASE

Had an ALS support meeting today, then came home and spent about 45 minutes in the pool. Today was a good day.
KimT is online now   Reply With QuoteReply With Quote
Old 07-12-2017, 09:21 PM #265 (permalink)
DaChief's Avatar
Member
 
Join Date: 2016
City: West Melbourne
State: Florida
Country: US
Diagnosed: 12/2016
Interest: I have been diagnosed with ALS.
Posts: 191
DaChief is on a very distinguished roadDaChief is on a very distinguished road
DaChief DaChief is offline
Member
DaChief's Avatar
Join Date: 2016
City: West Melbourne
State: Florida
Country: US
Diagnosed: 12/2016
Interest: I have been diagnosed with ALS.
Posts: 191
DaChief is on a very distinguished roadDaChief is on a very distinguished road
Default re: PALS roll call Wednesdays (or whenever) PALS ONLY PLEASE

A rainy Wed pm here. Heading to the VA in Tampa next week to meet the ALS team there. Still trying to hammer out all the decisions needed for our house remodel.
DaChief is offline   Reply With QuoteReply With Quote
Old 07-13-2017, 03:33 AM #266 (permalink)
Member
 
Join Date: 2016
City: Hillsboro
State: OR
Country: US
Diagnosed: 10/2016
Interest: I have been diagnosed with ALS.
Posts: 269
KW1234 has a spectacular aura aboutKW1234 has a spectacular aura aboutKW1234 has a spectacular aura about
KW1234 KW1234 is offline
Member
Join Date: 2016
City: Hillsboro
State: OR
Country: US
Diagnosed: 10/2016
Interest: I have been diagnosed with ALS.
Posts: 269
KW1234 has a spectacular aura aboutKW1234 has a spectacular aura aboutKW1234 has a spectacular aura about
Default re: PALS roll call Wednesdays (or whenever) PALS ONLY PLEASE

Checking in for the first time in several weeks. I thought i had a hemmi problem from a bout of constipation but it turns out I managed to get a fissure that is not healing. I meet with a surgeon next week to figure out what to do. Being in a lot of pain and not being able to sit has impacted my ability to tube feed and I have lost 10lbs this month. On a positive note I am doing the ALS at home study which includes a spirometer. With breath stacking, he cough assist and the bipap my fvc numbers are now consistently above 80%.
KW1234 is offline   Reply With QuoteReply With Quote
Old 07-22-2017, 08:24 AM #267 (permalink)
DaChief's Avatar
Member
 
Join Date: 2016
City: West Melbourne
State: Florida
Country: US
Diagnosed: 12/2016
Interest: I have been diagnosed with ALS.
Posts: 191
DaChief is on a very distinguished roadDaChief is on a very distinguished road
DaChief DaChief is offline
Member
DaChief's Avatar
Join Date: 2016
City: West Melbourne
State: Florida
Country: US
Diagnosed: 12/2016
Interest: I have been diagnosed with ALS.
Posts: 191
DaChief is on a very distinguished roadDaChief is on a very distinguished road
Default re: PALS roll call Wednesdays (or whenever) PALS ONLY PLEASE

Ok, so I am aware it is not Wednesday but had a busy week. I spent the last 5 days at the VA Hospital in Tampa going through my initial evaluation. I had sonagrams, x-rays, strength tests and of course they took about a gallon of blood for numerous testing. The results......I'm healthy as a horse. Everything working as it should and really good readings except for a slight vitamin B issue.............and then there is ALS. What a kick in the a$$! Oh well, guess I should be thankful for what I do have.
DaChief is offline   Reply With QuoteReply With Quote
Old 07-22-2017, 09:41 PM #268 (permalink)
KimT's Avatar
Extremely Helpful Member
 
Join Date: 2014
City: The Beach
State: South
Country: US
Diagnosed: 08/2015
Interest: I have been diagnosed with ALS.
Posts: 2,939
KimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond repute
KimT KimT is online now
Extremely Helpful Member

KimT's Avatar
Join Date: 2014
City: The Beach
State: South
Country: US
Diagnosed: 08/2015
Interest: I have been diagnosed with ALS.
Posts: 2,939
KimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond repute
Default re: PALS roll call Wednesdays (or whenever) PALS ONLY PLEASE

I guess all of us skipped Wednesday. I drove myself to Mayo Clinic Thursday to see my ENT for a non-ALS related issue. It takes about two hours each way. I had a very good book to listen to and the traffic was not bad. I was back long before dark so I went in the pool for about 30 minutes. I guess I didn't realize how much it took out of me. I've had 2-hour naps for the last two days.
KimT is online now   Reply With QuoteReply With Quote
Old 07-26-2017, 09:15 PM #269 (permalink)
KimT's Avatar
Extremely Helpful Member
 
Join Date: 2014
City: The Beach
State: South
Country: US
Diagnosed: 08/2015
Interest: I have been diagnosed with ALS.
Posts: 2,939
KimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond repute
KimT KimT is online now
Extremely Helpful Member

KimT's Avatar
Join Date: 2014
City: The Beach
State: South
Country: US
Diagnosed: 08/2015
Interest: I have been diagnosed with ALS.
Posts: 2,939
KimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond repute
Default re: PALS roll call Wednesdays (or whenever) PALS ONLY PLEASE

OK, It is Wednesday, right?

A friend came over for a short visit and we went in the pool for about a half hour. The pool temperature was 87 and it was lovely outside.
KimT is online now   Reply With QuoteReply With Quote
Old 07-27-2017, 05:42 PM #270 (permalink)
swalker's Avatar
Senior Member
 
Join Date: 2014
City: Vail
State: Colorado
Country: US
Diagnosed: 07/2014
Interest: I have been diagnosed with another Motor Neuron Disease.
Posts: 970
swalker is a splendid one to beholdswalker is a splendid one to beholdswalker is a splendid one to beholdswalker is a splendid one to beholdswalker is a splendid one to beholdswalker is a splendid one to beholdswalker is a splendid one to beholdswalker is a splendid one to behold
swalker swalker is online now
Senior Member
swalker's Avatar
Join Date: 2014
City: Vail
State: Colorado
Country: US
Diagnosed: 07/2014
Interest: I have been diagnosed with another Motor Neuron Disease.
Posts: 970
swalker is a splendid one to beholdswalker is a splendid one to beholdswalker is a splendid one to beholdswalker is a splendid one to beholdswalker is a splendid one to beholdswalker is a splendid one to beholdswalker is a splendid one to beholdswalker is a splendid one to behold
Default re: PALS roll call Wednesdays (or whenever) PALS ONLY PLEASE

Well, here I am several weeks and a day late.

We got back from Yellowstone late last week and I am recovering well. I will start a thread about our trip before long. In short, it was hard but wonderful!

Steve
swalker is online now   Reply With QuoteReply With Quote
Reply


Currently Active Users Viewing This Thread: 1 (0 members and 1 guests)
 
Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Trackbacks are On
Pingbacks are On
Refbacks are Off

Similar Threads
Thread Thread Starter Forum Replies Last Post
PALS roll call Wednesdays ( or whenever) Nikki J People With ALS - "PALS" 1169 02-01-2017 09:35 PM
CALS Roll call affected Current Caregivers (CALS) 1125 04-01-2016 01:55 AM
CAREGIVER ROLL CALL: How's everybody doing? LornaDoone Current Caregivers (CALS) 110 05-27-2011 10:30 PM
Roll Call- Anyone going to DC for ALSA Advocacy? KickALS Event Announcements 8 05-08-2010 10:11 AM
Hoosier PALS, CALS, etc - Last call for advocacy feedback for ALSA 2008 issues! rknt50a General Discussion About ALS/MND 2 12-21-2007 04:01 PM


All times are GMT -5. The time now is 01:42 PM.

 

Who we are

"We are a volunteer-driven online community that originated in 2003. We are a resource for anyone affected by ALS and MND. We are a community of like-minded and compassionate individuals. Together we are the ALS Forum and together we build this online resource and online community."

 

Want to help?

Have you found our website helpful? Do you enjoy having a place to talk to people that are knowledgeable about ALS and MND? If you have found it helpful to chat with people at different stages of the ALS/MND journey we encourage you to get involved.

Copyright © 2016