4 years

[patrick123]

9/12/2012

A day that changed my life.
Turned it upside Down.
A day that changed the ones I love.
Brought challenges I was not sure I could face.
Looking back on that day.
I have learned that living with ALS.
Has not weakened my spirit, but made it stronger.
I have made many new friends.
And have seen the strength of friends no longer with us.
They have inspired me, and lifted me when I needed it.
Turning loneliness into belonging.
I cannot stop what is happening to me.
My voice but a whisper.
My breath is helped by a machine.
I rely on the love of family to keep me going.
I have often wondered what legacy I would leave.
I don't have much, but what I do have are my words.
My thoughts, my expressions.
Good and bad, but still mine.
To impart of small piece of myself.
To those who all to often feel alone.
I still don't know what challenges I will face.
What roads I will take.
But I know that whatever road I take I will not be alone

4 years ago I was diagnosed ALS

Live well and dance in your underpants.

Patrick

 

[Atsugi]

Always good to hear from you, Patrick.

 

[azgirl]

Beautiful, patrićk.
Thanks for sharing.

 

[chally]

Thanks Patrick, great to hear your words ,so inspiring!
Sorry I don't wear any underpants,but I jump around in my birthday suit quite often. Love ya chally

 

[azwxman]

Patrick,
loved reading your words and realizing how they reflect my experience as well. Thanks for sharing. like chally I gave up underpants, and I never was much of a dancer. But I'm happy that other folks are finding happiness in spite of this disease.
mark