Nikki J
Moderator
- Joined
- Mar 22, 2012
- Messages
- 16,384
- Reason
- PALS
- Diagnosis
- 04/2014
- Country
- US
- State
- MA
- City
- Boston
We all have been way too quiet!
I know it is hard for many to post and many of us have been struggling physically and/or emotionally.
What have you all been doing? I was lucky to have a trip already planned before my sister's death and last month was able to spend 2 weeks with our cousins which really helped.
Warm weather and sunshine have also arrived - also helpful.
Needing to make some changes to accommodate progression but continue to feel fortunate it is not faster.
Frustrated to find my 2 medical encounters so far this year ( different providers- different institutions) were both billed incorrectly so calling and emailing to get those fixed ( no my diagnosis is NOT " flat feet"!!)
Hoping to hear from you even just a little bit, my dear friends
I know it is hard for many to post and many of us have been struggling physically and/or emotionally.
What have you all been doing? I was lucky to have a trip already planned before my sister's death and last month was able to spend 2 weeks with our cousins which really helped.
Warm weather and sunshine have also arrived - also helpful.
Needing to make some changes to accommodate progression but continue to feel fortunate it is not faster.
Frustrated to find my 2 medical encounters so far this year ( different providers- different institutions) were both billed incorrectly so calling and emailing to get those fixed ( no my diagnosis is NOT " flat feet"!!)
Hoping to hear from you even just a little bit, my dear friends