Dear pals and cals,
i have a favor to ask you and lord please give me the intelligence to get this down in writing so it can be understood. today was a bad day for tim and it didnt turn out that great for me either since i am tims support system and we got bombed by health care. monday night tim had a fall while he was putting away one of his precious albums and hit his head he tried getting up resulting with rug burn on his knee and also needed to use his life line bracelt to phone the paramedics to come help him up. they checked him over and everything was all right but head wounds do bleed profusley, no stitches though. of course this was all reported so we had the nurse the socail worker and the home care aid at his house today. i understand they were just doing there job but it was very disturbing.
construction in his house is taking a little longer then anticiapated so his bedroom will not be done proably for another 2 weeks or so. once he moves in there then i will move into the exisiting room. they told him they had accomodated him enough and that if i did'nt move in soon he would be going to a hospital or a home for safety reasons.
tims spirit today died a little i think and it was sad to watch he didnt thnk the fall was a big issue and he also doesnt think when he chokes on little pieces of food that this is an issue either. he knows this happens and hes in control of it but one home care worked gets scared and now the social worker doesnt want to put her in that position. result puree his food yuk. no way and i told them they could at least try mincing or maybe try a different diet before taking the extreme. they also brought up a feeding tube and i had to leave the room. tim is still far away from needing this and after going outside to get my composure back i went in and talked to tim in front of them all and said its time for baby steps again. i asked him to remember when this all started and how he had to make changes that were hard but he did and had Dealt with them up to this point where he is comfortable with them and now we need to try new things.i really felt he was under attack today and when he cant really express himself because of his speech i find it very unfair.
tim doesnt have a support system all he hears is what the medical people are telling him and me. his freinds no nothing about the disease and i was wondering because you are so all in tune with what you are going
through and how far your disease has progressed if you could give him a little hope by writing him so he doesnt feel he all by himslef with this thing.they are ready to put him in a hole by fall and if they continue on with this depressing news everytime they go visit he is going to give in. they scared him today and they scared me. he needsto know there areother people out there that are sufering from the same thing he has and are amking it and still have that positive outlook on life that i know deep down he still has but if this negative behaviour continues i am going to lose my best freind becasue he is going to say f*+^% it., and its too damn early. so this is my favor could you write him whether you are a pals or cals and give him support this town just doesnt have it. you dont have to mention my letter just how long you have had als and where your at and things that maybe work for you and give him some hope and i know this is asking a lot because you are all going through a transitional time in your lives now too but i need help and he just cant keep hearing from me.timserhan@hotamil .com i would appreciate this so much.
als about loving someone