>I've learned is that no two ALS cases are alike. Here is a question anyway. Do Bulbar victims (pick one) always/sometimes/rarely/never or eventually graduate to muscular atrophy of the limbs?
I think your 1st point is right, no way to guess. I do know it is healthier to be thankful for what still works than to resent what doesn't (easier said than done
) -- there is one fellow on here today in his 8th year. Me, I'm hoping to make it to one more season, as Michigan has blown it to hell again this year - they are playing worse than I'm talking :-(
>Smoothies that have lots of protein and calories can be a great way to get what you need into you without much effort.
Fruit smoothie 350 cals 2x / day = 700 cals
chocolate milk/banana/2 tbls peanut butter 700 cals 2x /day = 1400
gazpacho 150 cals 2x /day = 300 cals
plus the fiber to keep the plumbing going
I've lost 4 lbs since I had to give up eating last Feb. -- btw, if you wouldn't mind, have a liverwurst & jack cheese on rye for me when you have a chance (just say "this is for Max" before the first bite)
also remember the rules:
#1 don't fall
#2 don't hang around sick people, at 1st sign of respiratory issue go to doc
#3 conserve energy, rest, never push it, try to relax
ALS is about living, not dying!
If you have not yet, go to youtube and search "ALS ABC" and watch all 3. I sent those to friends and family, too.
like all the others, sorry to meet you here but welcome!
The next weeks, months will be an emotional roller coaster. Try to go with the flow, expect
fear, anger, bitterness, and a new awareness of life. I have found that being active here on
these forums has helped me in way I cannot explain, but you will see.
before trying miracle cures, etc., ask here, go to alsuntangled dot com.
Lastly, anxiety can be debilitating so beware.
Max