Omar
Distinguished member
- Joined
- Apr 13, 2007
- Messages
- 138
- Reason
- PALS
- Diagnosis
- 08/2006
- Country
- BE
- State
- Belgium
- City
- Brussels
Dear mates,
I know how confused and uncertain lots of us are. The more I read about people with ALS,
the more I understand that sooner or later I have to quit lots of things I like.
I hope that after sharing with you my personal story I would be able to take the right decision.
The fact is that I have been living for two years now in The Netherlands, doing my Masters and have been diagnosed right after finishing my first year. At that time I was planning to do my second year, get my Masters and go back to my parents. Therefore, I asked my teachers
for a possible adjustment in the program in case of any physical weakness; They were clear
that no adjustments would be done and in case I won't be able to follow the program I won't get my degree. I was even told to reconsider joining the second year group.
I was in a way disappointed, and already shocked from the diagnosis itself. So I was away for 3 weeks then decided to go back, work hard, do my best and get my degree. Unfortunately I was avoided by my classmates and teachers and didn't get any update for the weeks I missed. (maybe they don't know how to deal with the fact that I have a terminal disease)
Anyway, I went back depressed to Beirut, and was on xanax and cipralex for 2 months. A month later and because of my slow progression I have decided to listen to my body and to keep on doing the things I like as long as I can. Now I am back to the Netherlands and have
decided to complete my MA for the coming year, but at the same time I am afraid from being ignored again from my teachers and the new group. I feel more like searching for another school and simply start a new MA which means another 2 years.
I don't know, just confused and lost as before but with more will.
Thank you for reading such a long post.
Omar
I know how confused and uncertain lots of us are. The more I read about people with ALS,
the more I understand that sooner or later I have to quit lots of things I like.
I hope that after sharing with you my personal story I would be able to take the right decision.
The fact is that I have been living for two years now in The Netherlands, doing my Masters and have been diagnosed right after finishing my first year. At that time I was planning to do my second year, get my Masters and go back to my parents. Therefore, I asked my teachers
for a possible adjustment in the program in case of any physical weakness; They were clear
that no adjustments would be done and in case I won't be able to follow the program I won't get my degree. I was even told to reconsider joining the second year group.
I was in a way disappointed, and already shocked from the diagnosis itself. So I was away for 3 weeks then decided to go back, work hard, do my best and get my degree. Unfortunately I was avoided by my classmates and teachers and didn't get any update for the weeks I missed. (maybe they don't know how to deal with the fact that I have a terminal disease)
Anyway, I went back depressed to Beirut, and was on xanax and cipralex for 2 months. A month later and because of my slow progression I have decided to listen to my body and to keep on doing the things I like as long as I can. Now I am back to the Netherlands and have
decided to complete my MA for the coming year, but at the same time I am afraid from being ignored again from my teachers and the new group. I feel more like searching for another school and simply start a new MA which means another 2 years.
I don't know, just confused and lost as before but with more will.
Thank you for reading such a long post.
Omar