charliegreer
New member
- Joined
- Jun 22, 2014
- Messages
- 1
- Reason
- PALS
- Diagnosis
- 06/2014
- Country
- US
- State
- al
- City
- huntsville
Hello, I am actually posting for my husband that was just diagnosed with ALS. He was diagnosed 7 years ago but when he went for the second opinion at Emory in Atlanta, he was told that there wasn't enough changes from the muscle and nerve biopsy to rule it as ALS. Now 7 years later and here we are again with this time a definite diagnosis. He has been sick for these 7 years without really knowing what was wrong. His first problem was loosing the use of his left arm, then it was dropping things, tripping and falling. His swallowing is bad, it takes him forever to eat and always has to drink something to get the food down. He is always tired all the time, has lots of pain in hips, legs, arms and his memory is terrible. Says things that doesn't make sense a lot of the time. He quit working almost 3 years ago and signed up for his disability but due to not having a definite diagnosis, he was denied. He did appeal but we have not heard anything yet. He plans to take his diagnosis to the lawyer tomorrow. Does anybody have any idea what stage he may be in so that we will know what to expect. I am his wife, I have loved him since I was 17 years old and I am 43 and he is 48. I want to be strong for him and I think the more I understand this disease the better I will be as his caregiver. The only thing the doctor told us so far is that he is definite that it is ALS and said it was the slow progressive kind. I think the thing I am most concerned with right now, is his swallowing. Any medications to help with that? Thank you for your time.