PALS only Facebook forum ...

[MaxEidswick]

We met a couple of PALS/CALS last night. I was introduced to a PALS specific Facebook forum:
https://www.facebook.com/groups/livingwithalsPALS/

 

[patrick123]

Max,
Thanks for the info

Patrick

 

[couponguy]

that is a really good facebook page. i am shawn. i just sent you a friend request.

 

[MaxEidswick]

Thanks, Shawn -- very pleased to make your acquaintance!

Here are myself and Sandy at our 36th ...

 

[dalvin]

I found the link on FB and hit the join button but haven't heard back yet

 

[MaxEidswick]

send me your email and I'll invite you ... at least I think i can ...

 

[dalvin]

Max, sent you both my emails on fb

 

[MaxEidswick]

Done, waiting on admin

 

[Tx Daddy's Girl]

No family members? Boooooooo!

 

[Nikki J]

There are a couple of groups for caretakers on FB Tx Daddy's Girl as well as quite a few groups for anyone affected by ALS sometimes there are things PALS need to share that they don't want to say to their LOs. I think the same is true of family that they need to vent but don't want their PALS to know hence the caretaker groups. Being FALS I have been ( still am because my sister is more progressed than I) on both sides of the fence

 

[skipper66]

You guys are just being stuck up and excluding us. Lol

 

[MaxEidswick]

>You guys are just being stuck up and excluding us. Lol

Hah! Hiding from the CALS is more like it!