Lory
Member
- Joined
- Aug 27, 2013
- Messages
- 13
- Reason
- Loved one DX
- Country
- US
- State
- MD
- City
- Baltimore
My dad was diagnosed with als about one year ago, he is 67. His first symptoms were hand weakness and trouble with fine motor things like buttoning. His doctor at the als clinic said he was diagnosed on the early side, which I guess is a good thing?
The biggest question my dad has had since the diagnosis is about progression, and we haven't gotten any answers. I guess I understand why the doctors don't want to make a predication, but is there really no rhyme or reason to how fast or slow this disease goes? :-(
If anyone can tell me their personal experience as a PAL or CAL in terms of symptoms and how they have progressed, it would really help. In one year since diagnosis, my dad has lost most of the use of his arms. He no longer drives, and my mom feeds him. He is able to hold and use an ipad mini for a bit. His voice is strong, the last FVC test he took was over 80% I think, and he walks independently. He has been feeling leg twitches for awhile though. With this info, is there anyway to judge how quickly his symptoms will progress?
The biggest question my dad has had since the diagnosis is about progression, and we haven't gotten any answers. I guess I understand why the doctors don't want to make a predication, but is there really no rhyme or reason to how fast or slow this disease goes? :-(
If anyone can tell me their personal experience as a PAL or CAL in terms of symptoms and how they have progressed, it would really help. In one year since diagnosis, my dad has lost most of the use of his arms. He no longer drives, and my mom feeds him. He is able to hold and use an ipad mini for a bit. His voice is strong, the last FVC test he took was over 80% I think, and he walks independently. He has been feeling leg twitches for awhile though. With this info, is there anyway to judge how quickly his symptoms will progress?