Joe,
Managing ALS is a personal choice up to a different point for everyone. It's great that you have the resources to implement your preference (get vented). Not everyone does, as you pointed out.
ALS is characterized as terminal when many high C's are not because the data suggests that the natural hx w/o venting is that most ALS pts will die sooner and of ALS respiratory failure as opposed to the high quad who could well die of sepsis instead as did, most famously, Christopher Reeve, despite 24/7 caregiver coverage. Apples to apples, vent to vent, the ALS pt has a shorter actuarial survival. The primary reason? Continued deterioration. The quad's status can be improved w/ decompression surgery (if/as indicated)/PT/rehab, after which stabilization is expected. Not so here.
I'm not critiquing anyone's decision to vent or not, but characterizing a terminal disease as terminal is not a medical conspiracy but a statement of fact. How long, hard and invasively anyone chooses to fight death is the last choice we have. But to choose wisely for oneself requires objective information, not sweeping generalizations. If wishes were horses...
I have read some of Dr. Bach's papers and he may well have an optimal approach for some ALS patients. But for some, such as my husband, a low EPAP, for example, is simply not possible. As with any treatment modality, all PALS find "the best of a bad lot" as they judge the matter. That you've settled on yours, does not, I think, confer upon you the right to critique others' based on the evidence available thus far, nor to confer false hope for a life expectancy that you yourself have not yet enjoyed, though I certainly hope you do. Some PALS do live for decades with a vent. Every such long-timer I have heard of/known ultimately has died by chance or choice of ALS, apart from Stephen Hawking, of whose definitive diagnosis I am not aware. That would make ALS pretty "terminal," and, as you know, most don't last decades.
Rage against the dying of the light as strongly as you wish. However, you needn't rage against your fellow PALS as you do so.