mbmurray
Distinguished member
- Joined
- Jan 10, 2013
- Messages
- 117
- Reason
- PALS
- Diagnosis
- 01/2013
- Country
- US
- State
- VA
- City
- NOVA
I guess all things being considered I am doing pretty well...
- Entered and completed Tirasemtiv drug trial
- Physically still in relatively good shape (right arm/shoulder continues to deteriorate), but no other noticeable decline in other body parts since Jan
- Setup vacations with family (Alaska cruise, Disney World, Las Vegas/Grand Canyon TBD)
- Receiving support from family and friends
- Still working FT!
- Only thing I am debating now is whether to start on Rilutek (generic brand )