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chrisroski

Active member
Joined
Apr 12, 2012
Messages
93
Reason
PALS
Diagnosis
01/2012
Country
US
State
Pa
City
Philadelphia
First, does anybody put anything in their feeding tube beside formula, like puréed things, soda, ice tea. Just what can you put in safely. Also, I have bulbar als and my facial muscles have atrophied,so much that my bottom lip hangs down and open, and because my mouth is always open it is very dry and sometimes the skin on the roof of my much peels off. I bought some of those sponges on a stick and keep putting liquid all inside my mouth, is there anyway to keep this darn mouth shut, it is so embarrassing and very annoying. Any ideas let me know

Also just wanted to say that anybody who,posted their story I want to thank you. They have been both sad, and inspiring.
 
Chris,

I'm not up on PEG tube nutrition, but Rose certainly is.
I think she has blogged here and also check out her profile page.
Barbie knows a lot about it too.
 
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