Need best doc recommendation

[NotALS!]

Does anyone have a doctor or clinic that they would recommend to someone who has conflicting diagnosis of ALS, spinal injury or other possible disease? I've been to 3 neurologists and all three say something different. In the meantime, I'm getting worse and now having trouble breathing.

I'm in CT but will travel to NY or Boston for testing. I really feel like its a pinched nerve in my neck but all the mri's say it isn't. I can hardly feel my hands, feet and face. I also now need a cpap and oxygen at night.

 

[Kathylund]

Hi, ct here too, I saw dr merit Cudkowitz, in mass general, she is a als specialist. She is a caring and wonderful dr and she runs the dept. a very good friend if mine, who is also on this site sees her also.

I too, have been going from neuro to neuro around here and can't find any answers, saw dr c and know I do not have als, still searching for answers though.

I hope everything works out!

 

[Nikki J]

Second the recommendation for Dr Merit C for als. we went to her for another opinion and even though my sister lives in another state and has an aLS clinic there she comes to see dr C several times a year and consults with her by email in between

 

[hjlindley]

Mass General is the best and largest clinic. I like Dr. James Berry who works for Dr. C

 

[lgelb]

Besides a fourth diagnosed opinion, you might want to see a different pulmonologist and have that person coordinate with the next neuro you see. PALS don't usually need supplemental O2 and it can do more harm than good unless your lung problem is something else.