Old 12-31-2012, 06:53 PM #1 (permalink)
New Member (Say Hi)
 
Join Date: 2010
City: merrick
State: ny
Country: US
Interest: I am a family member of someone with ALS/MND.
Posts: 2
AdamB is on a distinguished road
AdamB AdamB is offline
New Member (Say Hi)
Join Date: 2010
City: merrick
State: ny
Country: US
Interest: I am a family member of someone with ALS/MND.
Posts: 2
AdamB is on a distinguished road
Default User NewDay, My Mother Passed a year ago.. to ALS

Hello all.

My mother user NewDay, Who posted a few posts on this website. She passed away Sept of 2011. We all miss her.

Just figured i would write. She was a fighter, Lasted almost 20 years with no Vent or feeding tube. She wanted to see her children grow up & believe me she did.

I have been wanting to start an Org in my mothers name, to help supply communication devices to those who have none. That Dynavox device changed my mother life, i would like to help others obtain a device & proper training..

She was strong, she was inspirational, She was a great person. she will be missed.

She wrote a book about ALS, It is on her Dynavox 3100 system, I am having trouble getting it off, any ideas?


here are 2 posts by her

My Letter to ALS

Hi All - I have had ALS 18 Years
AdamB is offline  
Old 01-04-2013, 09:48 PM #2 (permalink)
Very Helpful Member
 
Join Date: 2007
City: Anywhere
State: Western Canada
Country: Can
Interest: Other
Posts: 1,439
laurel is on a very distinguished roadlaurel is on a very distinguished road
laurel laurel is offline
Very Helpful Member
Join Date: 2007
City: Anywhere
State: Western Canada
Country: Can
Interest: Other
Posts: 1,439
laurel is on a very distinguished roadlaurel is on a very distinguished road
Default Re: User NewDay, My Mother Passed a year ago.. to ALS

Adam I am sorry I missed seeing your post on New Year's Eve. I do remember reading your mother's posts. I am so sorry that you have lost her. She sounded like a real fighter and a remarkable person. I don't have an answer about the Dynavox--maybe someone else will know and respond. What a good son your are to write to us and to honour her with your words. All the best to you and Happy New Year too.

Laurel
laurel is offline  
Closed Thread

Tags
als, book, children, communication, dynavox, feeding, feeding tube, ideas, life, newday, vent, wanted, website


Currently Active Users Viewing This Thread: 1 (0 members and 1 guests)
 
Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Trackbacks are On
Pingbacks are On
Refbacks are Off

Similar Threads
Thread Thread Starter Forum Replies Last Post
Your user name, what does it mean? sadiemae General Discussion About ALS/MND 44 07-18-2013 02:01 AM
User NewDay was my Mother 20 Year Veteran of ALS AdamB General Discussion About ALS/MND 1 01-02-2013 08:46 PM
Mother passed Sophia77088 In Memoriam/In Memory of 13 05-09-2012 04:35 PM
My mother passed away JoannaMorris In Memoriam/In Memory of 22 01-12-2012 03:12 PM
Mother-in-law passed away from ALS - seeking help and support amylpav22 In Memoriam/In Memory of 5 04-14-2011 04:26 PM
Another Year has passed, happy New Year peter57 Other 14 01-01-2011 09:52 PM
Mother recently passed away taylor22 Do I Have ALS? Is This ALS? 12 05-08-2010 01:34 PM
AAC: A User's Perspective BarryG People With ALS - "PALS" 2 11-05-2009 08:06 PM
user name BLPhill General Discussion About ALS/MND 9 01-17-2009 11:44 AM
My Mother Passed Away chrismaya In Memoriam/In Memory of 14 09-18-2008 10:35 PM


All times are GMT -5. The time now is 11:51 AM.

 

Who we are

"We are a volunteer-driven online community that originated in 2003. We are a resource for anyone affected by ALS and MND. We are a community of like-minded and compassionate individuals. Together we are the ALS Forum and together we build this online resource and online community."

 

Want to help?

Have you found our website helpful? Do you enjoy having a place to talk to people that are knowledgeable about ALS and MND? If you have found it helpful to chat with people at different stages of the ALS/MND journey we encourage you to get involved.

Copyright © 2016