Floyd Parton
Active member
- Joined
- May 23, 2012
- Messages
- 34
- Reason
- PALS
- Diagnosis
- 05/2012
- Country
- US
- State
- TN
- City
- Clarksville
I go to Vanderbilt in Nashville on 19 July to visit Dr Donofrio, the regional expert on ALS, so I wanted to wait until after 19 July when I would have a second opinion concerning my ALS diagnosis and then I was going to make my second post, however I had a pressing question and was hoping for some input. I am almost 6 foot 4 inches tall and weigh 216 now. I weighed 234 in November when I realized something was happening to me. At first I was not concerned and losing weight was fine since I weighed more than I should anyway, but now I find myself struggling to maintain my weight. If I do not eat 4 meals in a day, I lose a pound or two. While I have no appetite or desire to eat, I know I need to eat. Fortunately, when I do eat, the food tastes good and it is enjoyable to sit down to a delicious meal. My ALS is limb onset so as of now I have no trouble swallowing. I presume this is pretty normal. I suppose the muscle breaking down is causing the weight loss. Anyway it is a bit challenging to get in my four meals each day and I was wondering if anyone has any good suggestions about keeping your weight on.
Thanks in advance for your guidance and suggestions........cheers....fp
Thanks in advance for your guidance and suggestions........cheers....fp