Old 07-03-2012, 11:27 AM #16 (permalink)
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Join Date: 2011
City: Raleigh
State: NC
Country: US
Diagnosed: 10/2011
Interest: I have been diagnosed with ALS.
Posts: 254
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Default Re: 27 yr old with ALS

Daniel,
Nothing new or original to add, just wanted to say that the folks here, the folks at the Triangle ALSA and the Duke ALS Clinic can offer you the greatest help you'll find anywhere! I was admitted to the club last year and because they are older (25,21,18,14), was able to tell my kids quite bluntly about the diagnosed and the prognosis.
Your babies are probably better served by gentler, slower approach based on your progression and the visible signs of the disease.
FYI, this Sunday the Triangle ALSA is having a meet-and-greet for PALS and CALS. Holler and I can give you the details.
Jeff
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Old 07-03-2012, 05:48 PM #17 (permalink)
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Default Re: 27 yr old with ALS

Daniel, so sorry for your diagnosis and so very young. Welcome to the family, which is what we are here. To help support, encourage and share knowledge, not to mention ranting and raving occationally. We share the journey together as best we can, everyone different yet the same. Wishing you the best and prayers for healing and strenght. {HUG}
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